Glioblastoma Why Why Why <br/>

FormerMember
FormerMember
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Glioblastoma

My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
  • FormerMember
    FormerMember

    Hi everyone

    We are hoping that B will be coming home tomorrow. Hopefully the bed, mattress, hoist etc will be delivered in the morning. I phoned the equipment supply company up this morning, told them our story and the lady at the other end of the phone said she would see what she could do for us.

    It’s lovely hearing everyones stories about how they met. Jay, my story is similar to yours in that my ex left me 10 years ago (after 15 years of marriage) and I had two boys aged 11 and 7. I met B 15 months later (June 2000) when I was still separated, he was the next door neighbour of a very good friend of mine and we met in a local pub. I must admit that at first I thought he was a bit of a wally, but when we both discovered that we liked Stevie Wonder, well…

    B said that he would have asked me to marry him during the first year that we knew each other but I was very wary and although I loved him at that stage I didn’t want to get married again. He moved in with us in November 2003, after we returned from New York where he ran in the marathon. And then on my birthday in 2004 he proposed. We got married on 30th July 2005 and he says it was the best day of his life. It was very special. Nothing fancy. Our local register office and a lovely meal for 65 in a local pub, followed by dancing to a live band in the evening. It was just what we wanted though, all the people there that we cared about. I can relate to what you said CH ‘if he’s ill, I’m ill’. I feel like B and I are 2 halves of a whole.

    One thing that I will treasure now is that B and I were able to see Stevie Wonder when he toured last year. We saw him in Birmingham, London and then at the end of September spent a wonderful few days in Paris where we saw him again.

    Jay – it’s lovely that you can get comfort form watching your wedding and seeing Jay as he was. I looked at the part of ours where B was doing his speech and I found that too hard at the moment. I know that one day I will be able to watch it and smile. I hope you’re not running out of freezer space with all the ice cream you are having to buy.

    Gayle – how long is it till you go away? What are we all going to do without you? We’re really going to miss you, but at the same time we’ll hope that you all have a fantastic holiday.

    Lesley – Paris (a place that’s very special for us), ahhhhhhhhh! Where in Paris did he propose, or shouldn’t I ask. And you fancied him when he was wearing a skirt. Ooops! I’d better be careful as I think I am outnumbered by the Scottish clan. (no offence intended). Thinking of your dad.

    Emma – have you suggested hair dye yet? Matthew could experiment and try a new colour every six weeks.

    I can’t reply to everyone else’s messages as I can’t get a complete page 88. Is anyone else having the same problem?

    So, Hi and love and hugs to everyone that I have or haven’t mentioned. Thinking of you all.

    Carrie x



  • FormerMember
    FormerMember


    Hi Gayle (and Martin if you're still reading)

    Our posts crossed. Yours is a lovely story too. Any wedding pictures to show us?

    Love Carrie x
  • FormerMember
    FormerMember


    Hi everyone

    More waiting. This time for the equipment to be delivered. They can't tell me when it might be, just sometime between 9 and 1.

    Hope you are all ok this morning. Thinking of you.

    Carrie x
  • FormerMember
    FormerMember
    Morning Carrie,

    hope you dont have too long a wait for the equipment, is B coming home today? Hope so, just bought the ok magazine it has a big feature about Jade Goody, so more tears coming along!! Keeping my fingers crossed for you today. xx

    love Gayle xxx
  • FormerMember
    FormerMember

    Hi Gayle

    Still waiting. I watched a little of Jade's wedding last night. I thought it was funny that she was laughing during the vows as in September (when we knew things weren't right with B but didin't know what was wrong) we went to a friends wedding and she couldn't stop laughing as she was so happy.

    Carrie x
  • FormerMember
    FormerMember
    Hello lovely ladies,

    Sorry Gayle I went off to bed so didn't see your reply till today. Love to you and hoping you are doing okay today..

    Loved all your stories ladies I feel I have a better picture of you now... Thank you so much

    Carrie I have pm'd you... thinking of you today lots

    Jon is shattered today but yesterday he was quite smiley which was very nice. We had some lovely cuddles and he got to see Emily open her gifts.

    Lots of love

    Jay xxx
  • FormerMember
    FormerMember


    Still waiting!
  • FormerMember
    FormerMember

    Getting really bored now, so I thought I would start something else off, although we may still be wating for some wedding stories and pictures from you lovely people.

    How about first dance songs. You know how sometimes you like a song, which is different from the normal style of songs you listen to? Well ours was like that. Even though we are huge Stevie Wonder songs and one of his songs is our song, we chose Ray Steven's Misty for our first dance. There are versions of it on You Tube if anyone is interested.

    Love to you all

    Carrie x
  • FormerMember
    FormerMember

    Hi Carrie,

    Any luck yet?? Keeping my fingers crossed for you both. Martin and I's two most important songs are How do I live without you by Leanne Rymes, 11 years ago I wrote all the words out for him and laminated it we still have it and also take thats quite recent song rule the world the words are lovely, god I crying just thinking about them.

    Jay, glad you all enjoyed yesterday and Jon was happy and smiling hope he gets plenty of rest today.

    hope everyone else is doing well today xxx

    love to all

    Gayle xxx

  • FormerMember
    FormerMember
    Ahhh The first dance..

    ours was No One (can get in the way of what I feel for you) by Alichia Keys...

    The part in it that goes

    I know, some people search the world, to find.. something like what we have
    I know people will try, try to divide something so real
    So till the end of time I'm telling you there aint no one

    Saw us through some heavy opposition from parents and friends who didn't like the fact that I am 7 years older than Jon....... funny how no one ever mentions it now!!!!

    Jon's song for me is.... wait for it...... drum roll

    The king of cheese Rick Astley's never gonna give you up....

    Bless him (couldn't 1st dance to that though I would have been mortified) As a concession we did a wedding party group joke dance to Mambo number 5, his other fav song!!!

    As you can tell my husband is both quirky and unique..... he used to have some crazy dance floor moves that sent the girls running for cover, but it didn't put me off. When a group of girls looked at me and offered me an escape from Jon's dancing in a club one night I just smiled and said "it's okay ladies.... he's all mine"

    Writing that has really cheered me up... sweet memories

    Love and hugs to you all xx
    Jay xx