My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Sorry to hear that your right there is always something, at least it will checked out properly at the hospital, keep my fingers crossed all is okay, let us know what happens. xx
Carrie, yeah its nice to see the snow I think it looks lovely, Martine gets so excited, hope you and D are well xx
Lesley - thinking of you - hope its nothing serious xxxxx keep us posted xxxx
Just back from hospital ourselves - matthews weekly review - THE TUMOUR HAS SHRUNK!!!!!!! not a lot but hey he has only been on the trial 3 weeks! so we are thrilled in fact shocked - but not going to get too carried away - asked loads of questions today - there are some people who have been on the trial and it worked for a while and then the BT grew and others that have been on it for 2 years so every day at a time. matthews leg pain they think is the DEX as he is on 6mg they are now going to start reducing them - bit worried as he's ok himself at the moment and dont want anything to upset the apple cart - got my big glasses out to watch for any changes now....
to everyone big hugs on a cold sunny day - no snow here Gayle so very jealous!!!
That is fabulous news, it doesnt matter by how much at least it is shrinking that is such good news, hopefully a break through, you deserve a wee wine tonight, my friend popped in this afternoon and we had a couple of glasses of wine, very enjoyable, I never usually drink through the week never mind through the day, ah well it felt good reminds me of my younger days lol.
Evening all Im a little earlier tonight ,kids in bed thank goodness!!
Lesley-Thinking of you and your family this evening,I hope your Dad is ok and makes a speedy recovery.
Gayle-Wishing you all lots of Fun in the snow!!
Emma-FANTASTIC!!!!Im elated for you and Matthew,wishing you lots and lots more shrinkage!!!
Just a quick one,me Mum&Dad have been really low the past few days since the MRI scan results,but things are looking up .Mum and Dad going to Tenerife on Sun for a week,looked into getting Dad those lovely socks to wear on the flight hes not a happy bunny!! His mood swings and aggressive behaviour have stepped up a level this week (bloody tumour!)and hes terribly upset t about it,trying to support him as always.My job for the next week is to research the two trails on offer one in London and one in Glasgow to see which way we go(if anyone wants more details just let me know). Is everyone aware of the risk of Blood clots?Ive only just found it out and been quizing the McMillan Nurse,again anyone wanting more details let me know but I dont want to post and bore you all.
Hi Emma we are checking out cerinadib excuse spellings at the Royal Marsden Prof Brada and Lumostine and Cerenadib at the Beatson cancer centre in Gasgow they are the only two trails I think he can qualify for??? Where abouts is your trial and waht drug?? Debs
Finally back home (with mum in tow!)...my dad's leg was scanned and it turns out he does have a clot as suspected- not just a small one but a huge one all the way up to his groin. His leg had went huge and purple. Thankfully its been caught and as the Doctor explained that if it had've went on longer he very well might not have survived. Anyway, he's been given an injection into his stomach and seems to be really settled and happy. He'll be in over the weekend to be monitored so hopefully things might improve. ,Sooo knackered...having some vino right now to help me relax!
Thanks for all your thoughts, hope today has been kind to you lovely people. Lesley xxx
