My partner Martin was diagnosed with this horrible desease on june 19th 2008. I am so scared of this monster of a disease, why does it happen, where does it come from? Cant we find a cure? please God find one soon. There are htousands of new cases every year why cant we save these peoples lifes from this horrible disease.
Hi Lesley Thank god you called the GP - and he realised what might be going on. Glad your home ok and that your dad is ok in the hospital and more settled now - have a few vinos for me tonight please! Hope he improves fast and can come home - take care Emma x
Hi debs - matthew is under marsden at sutton and he is on the lapatinib and pazopanib trial - they are amazing there and will keep fighting the fight with you - good luck in your search - anything is worth a shot in my opinion he was given about 3 months before he got on this trial - now the thing has shrunk slightly - there is hope folks xxxx
Lesley I am so happy that your Dad is okay,You were quick to act on your feelings about it and all is well Brilliant news
Buying Dad some compreshion stockings for flight will ask Doctor to see if this is a long term option to prevent clots Have a Big glass of wine and se stress Well done Lesley
Thanks Emma, I agree anything is worth a shot ,They havent said how long they think Dad has but, looking at all the studies and trial info Id say the same 3months which I really cant deal with!!It was bad enogh being told 18-24mths in October and now only 3mths!!Sorry but I refuse to acknowledge what is the inevitable(one day)but nobody can tell me or my dad when that day will be so untill then its onwards and upwards I feel like Martin luther king ' ''I have a dream today" That one day they will find a cure for Cancer....all cancers and rid the world of this terrible disease.
Living in Hope sending strength and peace to us all Debbie
Emma - BRILL news for Matthew - that is unbeleivable ....you MUST be celebrating tonight!
Debbie - hear hear, your right, anything is worth a shot - our loved ones are NOT statistics...there are so many out there who beat the odds....why shouldnt our ones be the ones amongst them?? In the last 6 short months my dad has had to face so many obsticles .....and until the final day we are told otherwise, well, he just wont be beaten...his spirit remains unshakeable so I too have to (try) and remain positive. Its so so bloody hard sometimes though!!!
Karen – thinking of you and sending you big hugs. Please keep posting to let us know how you are.
Debbie – as you say we should all hope and ignore the statistics. While our loved ones are still with us there is hope.
I hope I haven’t been insensitive in saying that and apologies to anyone who feels I have been.
Lesley – really pleased to hear that your dad is comfortable in hospital. Hoping he has a restful weekend and that he is back with your mum soon. Spoil yourself this weekend, you must be shattered.
Gayle – hope Martine had fun in the snow today. I love looking at snow but not having to drive in it. I think I’m getting softer as I get older!
Julie – hope you and Stephen are both ok
Diane – thanks for your thoughts and that things are ok with you.
Debbie – hope your mum and dad have a good holiday. It’s hard isn’t it when their personalities change and they are aware of it. I can’t imagine what it must be like to be the one who has the BT.
Emma – I’m still smiling when I think of your news. Just remember too that it’s people like Matthew, who have the courage to take part in trails, that can help so many people in the future.
Joan – thinking of you and sending you a big hug. I think the sea levels must be rising with the amount of crying I do. Sometimes I can predict when it’s going to happen and at other times it just catches me out. I sometimes wonder where all the water comes from.
Joy – hope you’re having a fantastic week with your relatives.
Izzy – thinking of your both and the little one. Hoping that you’re having a more restful time now Blair is home with you.
CH – I often read your posts on we talk brain tumours and they make me chuckle. It was really good to hear your news too.
B is going to try and spend a day in the day centre at the hospice tomorrow, with a view to him going there one day a week when he comes home. He chose Friday as they do art then and I think he has visions of being the next Picasso. Keep watching this space, you may be witnessing the birth of the next famous artist.
Well I’m off to bed now as I’m really starting to ramble.
Love to all of you, you really are very special people.
Lesley I cant believe you can still type,even though i dont drink I think after your day I would have got slaughtered!!!!h a ha
I know everyone keeps telling me to be realistic but they can bugger off!!This is me being realsitic......... all of our loved ones are special and they deserve a chance,no matter how big or small,Im fed up of being told to prepare my Dad for the end................why??? he doesnt want there to be an end and Im sure that goes for most of us fighting this disease alngside the ones we love. I know its so bloomimg difficult to get through a day living with your loved ones who have this bugger of a disease but if we dont have hope for them then what do we have?????????? While ever my wonderful Father can wake up in a morning ready to fight for another day of life then I will stand by his side.......... Love to you all sorry Im on my soapboxXXXXXX
Just want to say to Carrie and Debbie - you two ladies are neither insensitive OR will ever offend anyone - Thats exactly what this site is for, letting of your innermost thoughts and feelings!
Karen - Thinking of you - hope your bearing up as well as you can.
Wishing everyone a peaceful friday - back up to the hospital in a bit to see whats happening now...quite scared in case something dreadful has happened to his leg overnight - just me being paranoid - the wine doesnt help!!
Thanks Lesley ,I was a little emotional last night abd just needed to rant !! Im sure your Dad will be fine,try notto worry but, ask the doc about compression stockings as they are suposed to reduce the risk of clots,Dad had them after the operation and hes wearing them Sunday for the flight.
Wishing everyone a happy day today Im off to drop off at Nurery and then work then Dads to do my usual daily round!!! Debbie x,
