Surviving Oesophageal Cancer

Hi Crystal

Thanx again for the tips and support.  Shaun gets very down and sometimes it is hard to be getting him to try to do things with out sounding like I'm nagging or bullying.  It is easy for me to say to do things but I don't have any idea of what ti must feel like to those undergoing the problem.

Hoping he feels better today and once home wil be more motivated to try to do a little more.  He is deffo having lots of naps!  He is at last having short dabbles on the computer tho still not been on his beloved "World of Warcraft"!

Hoping also that today finds u well.

Much love to you and everyone else on here.

xxxxxxxx

If Shaun goes online and plays Call of Duty, he might well find himself up against Stormbringer or Purplerain one of these days (hubby and me), although I don’t play Call of Duty that often any more as I get too tired easily and lose too often Lol.

xx

Crystal, you made me feel better, I still try chocolate but it does give me cramps etc if I eat more than a couple of bits! Like you though I still do it. I probably always will Galaxy counters are my thing at the moment.

Is it because it is sugary or fatty do you think?

Is it like a diabetic overdosing on sugar maybe?

Charlotte

Lol Charlotte.  With me it’s the Maltesers and Minstrels and sometimes the M&Ms and Galaxy slabs, or quite often I’ll have Walnut Whips, well ok, it’s all chocolate if I’m honest.  I’ll open the pack and know absolutely that just two little pieces are going to make me feel very ill, but I just can’t stop myself from doing it.  I don’t know why we have to do this, I don’t think there is a logical reason beyond liking chocolate quite a lot.  The after effects feel like dumping syndrome, but it could also be a blood sugar rush, although diabetes has been ruled out.  Mind you, I don’t really discuss the chocolate aspect when I visit the docs as he might suggest I stop.

Crystal xx

Hmmmmm chocolates yum yum!!  Work sent me some Baileys and a box of Lindor on Friday - choccies already all gone!

Hub not doing brilliant at home really.  Just lying in chair all the time as no energy at all to do anything else.  Cant even bother to reply to texts hes been sent.  Hes also started with severe upset tum since before the weekend.  Everything he eats goes straight through him which cant help with him feeling so weak.  Got a little concerned so have rung the dr who has prescribed some Lomotil.  Am hoping this calms things down so he can get something inside him.

Maisebird, hope that today finds Shaun much better and that he will soon be back home with you. Talk to you later.

Love and very best wishes to everyone xx

Hi All, especially Maisiebird and Bacardi! 

The weakness is very normal, but I'm sure it will all improve.

When my husband came out of hospital after the op (July) he was very weak, everything made him tired, having a bath exhausted him. He needed my help getting in and out the bath and was very weak. He needed to lie down for quite a while after doing anything.

 He was sick after eating quite a few times and had bad stomach cramps. He had to sleep quite a bit during the day BUT now a few months on he's doing great. He still can be sick after eating because he has a nasty cough from radiotherapy  but overall is now doing really well and doesn't feel the extreme weakness anymore.

Lots Of Love, Thinking of you all.xxxxx

Judy - If you're reading this Congrats on your CT scan, I'm so pleased with your results - but I seem to have lost the thread it was on. Lots of love and a big hug xxxx

Lol - no he doesn't play COD.  He is a WOW fan but can't be bothered with it at mo.  He coming home moz so will be trying to get him motivated.

xxxxx

Hi Samantha

Thank you for the much needed words of encouragement.

Yes - he too gets whacked out after simply having a bath and often needs to lie down after doing anything.

Sickness now controlled and been told its a normal thing after this treatment.  No stomach cramps luckily. 

Hoping that after this new setback things will soon be on the up.  Its great to hear that your husband is doing so well and hopefully in a few months, we too will be in that place.

Much love and good wishes to you both for continued health.

xxxxx

Hi Crystal

Not good tonight, Shaun remains in hospital for the time being.  Now has been vomiting for over 12 hours.  He is exhausted, fed up and frightened.  Says he wishes he'd never had the op!!

Not happy at this afternoon when it took almost an hour before someone came to address the concerns that were going on at the time.  Iknow they are very busy but....

I am hoping tomorrow brings better thins but then I am the eternal optimist- just as well!

Much love to you and everyone and hope u are all well tonight

xxxx

Hi Maisiebird

(I've just posted this over in the group as well.)

Whilst Shaun has been in the hospital has a consultant or another gastroenterologist been called to examine him, because if it’s continuous vomiting with no let up in between, then he absolutely needs to be examined properly, as he’s at risk of dehydration again at the very least.  I hope that medical team has that under control at least.  Someone I spoke to over two years ago had continuous vomiting and it was due to severe irritation where the surgical joins had swollen and inflamed.  I’m not saying that is what is wrong with Shaun, but he does need to have this attended to.  Hasn’t he been given medication to try to stop the vomiting?

Also, I’m astounded that the young doctor and nursing staff are ignorant of the Ivor Lewis procedure, that is seriously worrying because part of their duties is to prepare the patients ready for that procedure and to discuss their care afterwards at their rounds.  Having just reread your post, perhaps the Medical Ward staff wouldn’t be familiar with the Ivor Lewis, but it’s still worrying.

It’s not surprising that Shaun is feeling very down, so let’s hope tomorrow brings something more positive, but keep pestering the staff if you have to.

Love and Hugs

Crystal xx