Hi, I am Tracy . I am a new member of forum. Would a newcomer be warmly welcome here? Good day you guys!!!

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Yes, you're very welcome here. These are real people with real problems and if you qualify step on board.  If not be happy and go elsewhere.  All the best Sue

Hi Janet

Your dad sounds a fantastic person and it’s so good that he has such a positive approach, as that always helps in many situations.  I smiled at the analogy to being a pirate, so I hope your dad does more swashbuckling and makes it walk the plank into oblivion. 

Sue and her husband here are an inspiration and show what can be achieved with the various treatments available, so never give up the fight and fight for whatever it takes.  I wish your dad good luck on the chemo treatment and hope that it does the job and holds it at bay for as long as possible.

Love and Hugs

Crystal xx      

Hi Tracy

All are made very welcome on here - this site has been a big help to me when my husband recently had the Ivor-Lewis op.

Janet - so sorry to hear your Dad is not doing so well :-(

Bacardiwoman - yay go girl -nurses rule ! 

Crystal - keep up the good work will amil u later 

Love to all on here xxxxx

Morning everyone

Not updated for a few days but just to let you know HES HOME!  Came out teatime yesterday!  It all feels very strange having him back knowing just a very short time ago machines were keeping him alive BUT the moral of the story is never give up hope.  Hes taking a while to settle back at home, think so much has happened to him whilst in there (plus hes come out a non smoker so that must be hard for him).  He seems a bit shellshocked and bewildered.  Hoping that will settle down.  He slept in chair last night after trying bed for 5 mins!  We have electric reclining chairs which are very comfy and think will be most useful.  He is eating quite reasonable amounts.  Made him small tea as not sure how much hes been eating and then later on he had 2 1/2 weetabix!!!!!!  Ive been ill with tonsilitis this week so will be nice to have few quiet days together at home before I attempt to go back to work next week.

Maisebird, pleased to hear Shaun feeling better after his blip earlier this week.

Janet, sending you big hugs, your dad sounds like a fighter (and brave pirate!!)

Crystal, thanks as ever for ongoing support.

Love to everyone else reading xx

Hi All

Brill news from Bacardiwoman - wow on amounts he can eat - 2 1/2 weetabix is impressive!!

Shaun still v tired - setback this week when had to go hosp - sent by GP.  Lungs still not fully recovered from the 2 ops and being deflated and moved twice.  Lots of pain, esp on coughing but told this normal.  Still only managing tiny amounts of food but has been fairly good the last 2 days.

Much love to everyone

xxxxxxxxx

Hi Bacardiwoman

So glad he’s home.  He's come a long way hasn't he and done so well.  It’s a good idea for him to be sleeping upright and I too initially slept on a reclining chair until it became too uncomfortable because of lack off support and not being able to turn.  I now have a reclining bed and still find it absolutely necessary to use it, but a flat bed with 6 pillows and a V shaped pillow can be made to support the scars, ribs, shoulders etc.

He’s definitely done well to eat two weetabix and should be eating around 6 or 8 tiny meals a day, or whatever finally suits.  It’s a very good idea also, for him to get outside to walk as soon as he feels ready, as this helps repair the lungs, aids breathing and heals the wounds, plus it will make him feel better emotionally.

Good luck and I hope his recovery is relatively straightforward and easy.

Love and Hugs

Crystal xx

Hi Maisiebird

I hope Shaun is better now after the earlier setback.  The tiny amounts of food will be like this for some time, it was many months before I had slightly larger meals, and by that I mean something that barely covered a tea plate.  Everyone progresses at their own rate and Shaun will find a plateau that is comfortable without making himself ill or uncomfortable.  There are still things that I can’t eat at all and sadly one of those is chocolate.  I do eat it of course because it’s chocolate and I love it, but I’m very nauseous afterwards and have to lie down.  You’d think I’d just stop the chocolate wouldn’t you, but no.

Take good care of each other.

Love and Hugs

Crystal xx

Hi Crystal and everyone

Went back hosp on Sat - prob be in few days.  Chest prob and hi temp - but that down again today. Constantly feels sick. Hoping for better this week.

Bcardiwoman - Good- luck today xxx

Much love to u and everyone on here - you all keep me sane!

xxx

Hi Maiseibird

Sorry to hear that Shaun has had to return to hospital, so I hope he’s out very soon.  With his previous additional lung complications it’s probably wise for him to be there where the docs can keep an eye on things for a day or two, especially as he has a temperature.   I would think they are concerned about the possibility of infection, so he’ll be watched closely.

Even in normal circumstances, by that I mean no complications, recovery can be very difficult and that’s why I always say the real recovery begins at home.  It’s completely within the range of normal to be constantly sick with the most awful stomach cramps and diarrhoea.  For a period of a couple of weeks I actually spent hours sitting on a chair near the bathroom and I was exhausted for many months, sleeping for around 10 to 12 hours per day with naps in between.  Dehydration is a common problem and the way I overcame this was to eat ice lollies constantly, as well as sipping from Elderflower cordial at all times, except when eating.  The entire experience is very difficult sometimes and it’s possible to feel very ill indeed.  It’s important to get physical exercise through it and to keep an active mind.  For me this meant walking as I’ve mentioned before, and playing Nintendo brain puzzles or just games, to ensure my mind was focussed, although invariably I’d fall asleep half way through whatever I was doing.  Everyone I’ve ever spoken to regarding recovery, experienced some, if not all, of these symptoms.  If you read back through this thread you’ll see what others have experienced.  For me personally, proper recovery took almost two years and even today I still have setbacks in most departments, especially with dumping and fatigue.  Don’t let this discourage you though.  There are people that are back at work after six months and hardly ever get any more symptoms.  It does all get better, it just takes time and loads of patience, sheer Will and focus upon the main goal, which is wellness. 

I send healing and calming vibes to Shaun and love and hugs to you both.

Crystal xx

Hi Bacardiwoman,

I hope all is well with your husband now he's at home, although I imagine he's probably suffering a little and still having trouble eating.  Take good care and keep in touch.

Love and Hugs

Crystal xx