Surviving Oesophageal Cancer

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Hi , I’m new to this site but wanted to share my experience of living with oesophageal cancer. I realise that I’m one of the lucky ones in that my cancer was caught relatively early and was therefore operable.

I was diagnosed with cancer of the oesophagus in February 2007 and after many tests and two sessions of chemotherapy I underwent an Ivor Lewis operation, which is major surgery to remove the cancer, and lasted around seven hours. I responded well throughout and remained only five days in intensive care before being moved to a general ward and released a week later.

Since then, I’ve continued to do well but suffer from dumping syndrome as a result of the surgery. This is an unpleasant side-effect that causes fatigue, sweating and nausea after eating. Also, I now have to have vitamin B12 injections every three months as my body can no longer process this essential vitamin.

All in all, I feel ok and have remained positive all the way through. I realise I’m extremely lucky and count my blessings every day.

I’ve read so many negative reports about this type of cancer so I felt I had to share something positive for those of you who have, or know someone with, Oesophageal cancer.

All the best

Crystal

  • FormerMember
    FormerMember in reply to FormerMember

    Hello Li. Glad to hear that Gerald is coping.

    I had a look at the group on facebook that you have started but can't work out how to join.

    Take care

    Mick

     

     

     

     

     

  • Hi All

    It’s been quite a long time since I posted here, yet I haven’t forgotten any of you and you are all often in my thoughts.

    I just particularly wanted to post here this morning as today marks the third year since my surgery, so this is an important milestone for me.

    Last year I posted here on this day too and the year before that I was on holiday in Italy, and standing in St Peter’s Square outside the Vatican, it suddenly struck me what date it was on that day. 

    Today, as I’m not doing anything special, yet every day is special, I’m going to walk in the park with my new dog and instead of counting my days I’ll just count all my blessings again.  You’ll all be in my thoughts as I do that. 

    Last year I said how lucky I was to have met so many good people here, so love and Hugs to Everyone who has ever posted on Surviving Oesophageal Cancer, and to those I’ve met since, I’ve so appreciated your support and friendship.

    Crystal xx

     

  • FormerMember
    FormerMember in reply to crystalclear

    Hi crystal, You could be like the Queen and have 2 birthdays, so happy 3rd birthday to you. can we all have some cake? What a lovely idea to all have an extra birthday, just a bunch of kids really. I always knew it, lol.love leisha xxxxxxx

    ((((((((((((((((((((((((((((birthday hug)))))))))))))))))))))))))))

  • FormerMember
    FormerMember in reply to FormerMember

    Congratulations, Crystal.  You're doing so very, very well.  I bet you didn't think three years ago that you would become such a great expert on OC and that you would find a new dimension in your life being a tremendous help to others in the same situation.  

    Have a lovely day.   I think we must all eat some real, or metaphorical, cake in your honour. 

    xxx

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Crystal

    It does not seem that long ago you were celebrating your two years, how quickly this year has passed, I had my two year in April, I sometimes can't believe how far I have come, I used to wonder if things were ever going to get better, and just when I think I have gone as far as I can go I get a happy surprise by being able to push myself that little bit extra, all I can say to you is congratulations and to hope this journey of discovery is the same for you.

    Steve x

     

  • Thanks all for your kind comments. 

    It does feel exactly like a birthday Leisha, and I did indulge myself with cake, but that’s normal, and there’s no harm in having some more cake is there? xx

    Grace, you’re absolutely right, but in fact, I didn’t think I’d be here at all three years later, let alone doing quite so well.  Each of these milestones leaves me amazed to be honest, but very grateful. xx

    Steve, you too have come a long way and congratulations on your milestone in April.  I do get those happy surprises you mention, first when I open my eyes first thing in the morning and then, as you say, when I can do that little bit more than I thought I could. xx

    Love and Hugs to each of you.

    Crystal xx

    Eating Pie

  • FormerMember
    FormerMember in reply to crystalclear

    Hi All

    Crystal 3 years in great !!...well done, what I find so positive about it all, is that you have used your experiences from the past 3 years to help and guide lots of people on here, for that I will always be grateful. You have helped make my familys journey  through OC a lot easier to understand and also provided an insight into what the future may hold  for our dad.....Thank you.  Here's to the next 3 years !!

    Janet

    xx

     

     

     

  • FormerMember
    FormerMember in reply to FormerMember

    Hi  everyone, hope you have all had a good weekend and have been able to make the most of the lovely weather. We enjoyed watching Blackpool ( on the tele) Win the match that puts them into premier league, Glad all over !!!!!!!

    Ed saw doc who said the scan was good and no new spread, next visit in 8 weeks. Short and sweet. Life is much better without the chemo so we will make the best of it.

    I hope you are all as well as can be, love leisha xxxxxxxxxxxx

  • Hi Janet

    It’s good to hear from you and thanks for your kind comments.  How is your dad doing?  I hope that he’s improving all the time and managing to push the boundaries just a little bit more each day.  I keep saying that I’ve arrived at my new normal now, but on a good day I can push those borders a little bit more, so in effect my new normal is still expanding Lol. 

    Yes, here’s to the next three years, for your dad and all of us.

    Love Crystal xx

  • Hi Leisha

    This is absolutely great news that there is no new spread, as it means all that chemo has kept it under control.  I hope that you can relax a little now, because you deserve to after all that you’ve been through recently.  Your attitude is brilliant and now you can focus on making all those arrangements and having some fun things to think about.

    Also, congrats to the ‘seasiders’ (Blackpool) for making it to the Premier League!!

    Love Crystal xx