Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


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Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember in reply to FormerMember

    Looking back, this episode was perhaps the beginning of the end. He did recover from the infection, but the lack of physiotherapy, and the extended break from sutent had changed things for the worse. When he finally got back to the hospice they discovered he'd lost the ability to move one of his legs, and the other was severely weakened.

    It took a while, but eventually he picked himself up from this latest setback and began to make plans for life in a wheelchair. Of course the first thing to be considered was what sort of car could be adapted for wheelchair driving.

    The next couple of weeks were filled with meetings about his care once discharged from the hospice. In and amongst he went to hospital to attempt to sort out his nerve pain. This had started before his urine infection but had become much worse. It had started to interfere with what little freedom he had left. Even getting out of bed was becoming impossible some days. It was starting to become clear to me that going home would be virtually impossible. He would need so many adaptations and almost 24 hour care. We attended a big meeting about this and the reality of his situation began to dawn on him. I would rather it hadn't.

  • Anne, so so sad, remembering Andrew as such an outgoing, friendly man with so many interests, that last post of yours just got to me......I hope this is cathartic for you, it certainly helps us know him better. 

    It's Friday and 'dance-the-c**p-out-of-cancer' day.....my song today has to still be a Christmas carol, since we haven't yet had our family get-together, that will be this weekend......it's 'Here we go a-wassailing' a nice cheerful one! 

    love to all xxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Dear Anne and Helen, one very huge and understanding of ((((((((hugs))))))

    My song for today is, Dionne Warick and friends - "That's what friends are for". http://youtu.be/EE9KT_dU_R8

    Where would we have been without each other over the latter years.Thank you to those who are no longer with us, god love them, or those that have now moved away from Macmillan, and those that are still here, you all know who you are.

    My very best wishes to you all for 2012.

    My love to you all

    Maryxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Just off to bed.... and remembered it was Friday, Well actually Saturday now.

    I don't know about cathartic, Moomy, sort of, maybe. Now I've got to near the end of his life this is certainly getting more difficult to write about. I started because I thought he deserved to be memorialised somehow, but now I think I'm writing as much for me as for him. I have got to thinking that his life was more than that of a cancer sufferer, and that maybe I'm doing him a disservice by only writing about the end of his life. But then again this thread was started at the end of his life, and in a sense he chose this way to memorialise himself.

    Anyway, my song for today, (yesterday), is Video Games by Lana Del Ray.

    Happy New Year to everyone.

    love, Anne.x 

  • FormerMember
    FormerMember in reply to FormerMember

    It was a really lovely Saturday in late August. With a lot of organisation and effort we had managed to wheel Andrew's bed into the courtyard. He'd not been able to get into his wheelchair for a couple of weeks due to nerve pain in his back and legs so getting outside hadn't been possible for him. Seeing and feeling the sun was a treat for him and we talked about my latest nursing home research. I'm afraid I lied about this, not wanting to worry or depress him. In reality, looking at some of these places had certainly depressed me!

    Then, after a short silence, he started THE conversation. The one that starts with 'What do you think happens when you die?'

    I have had this conversation before; with my mother and my friend, Carole, but a little bit of practice doesn't seem to make it easier. But we talked and speculated and compared beliefs and fears, and in the end he did seem a little easier in himself.

    'I'd better get Richard's dad in.' were his parting words that day. Richard's dad was his solicitor. I knew then he'd admitted defeat. Although he'd planned out his will, he'd not done anything official, thinking that would somehow hasten the end. Making an official will, for him, was laden with meaning. 

  • My tune for 'dance the c**p out of cancer, in view of the rather promising news from our daughter, has to be a joyous one, so I'll go with Hallelujah' from Messiah!

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Good Morning all,

    Glad to hear that there is some good news about Caz.

    My song for today is 'Rolling in the Deep' by Adele.

    Have alovely weekend.

    love, Anne.x

  • FormerMember
    FormerMember in reply to FormerMember

    Hello everyone,

    I hope it's not too late to wish Anne, Helen, Dottee, Liz, and everyone who pops into this lovely thread a very happy new year.

    Helen, I'm so glad to hear that after all Caz has been through over the years, things are looking good. Its heart-warming and inspiring to read about Caz's wonderful achievements.

    Anne, what can i say?  Your words have made me smile when remembering  Andrews wonderful sense of humour and zest or life,  and made me cry when i read of his and your struggle and pain.  Above all, it reminds me of Andrew......and that is all good.

    Dear Dottee and Liz,  you are in my thoughts and I wish you both every happiness during 2012.

    To all the other people on this site who have been a part of my own journey.......my Mac friends.....you know who you are,.....I thank you, and wish you all a happy new year.

    Christine

    xxxxxx

  • Christine! Happy New Year to you too! good to hear from you! How are things going? 

    I too am really grateful to Anne for giving us more insight into Andrew, as I know we only 'knew' him through the pages of this site. I smile, cry and feel so helpless when I read the background.....

    love to you all xxxxxx

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Things are going very well thanks Helen.

    Like millions of others I tend to suffer with the lack of sun and exercise during this time of year.....resulting is some winter blues.  But on a brighter side, I've managed to get through one term of college.  Just another 2 and I'll be free for the summer.  I'm hoping that we don't get a late winter, as I'm looking forward to a trip to Durham at the end of March for a family wedding.  I know that college wont give me time off for this so I'm going to be a naughty student and take a sicky which  will probably result in a £50 fine but it'll be worth it.

    Must go now as I need to try to remove my lash extensions (put on at college) as they are starting to fall out and I'm starting to look like I'm being attacked by spiders.  I'm hoping my real lashes don't come out as well.

    x

    Christine