Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


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Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • Anne, he was lovely to chat to, I was just so worried when he first spoke, he sounded really ill, but perked up, we chatted for almost an hour.....wish I could have known him better. I know he loved his pal's RangeRover, we chatted a lot on here about the off-road driving courses, we'd driven on one as we have a Defender. 

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    My song for today is 'Tico Tico' from Caz' CD 'Smile'...........because it makes me smile...........

  • FormerMember
    FormerMember in reply to FormerMember

    Dear Anne,

    Huge ((((((((hugs)))))) just for you. I did not know Andrew, although feel as if I did, Dianne often mentioned him in one of our many telephone conversations, what a wonderful man, I am so sorry that you lost your lovely brother.

    This song is for everyone, and one of these days we are all going to dance the c**p out of cancer.

    http://youtu.be/dDzNAxpOaYo always makes me cry lo!

    Love to you all

    Maryxxxxxxx

  • FormerMember
    FormerMember in reply to FormerMember

    Thank-you for your messages all. Wasn't convinced this was the right or necessary thing to do, but felt the need to sort of memorialise him somehow.

    Anyway, back to the story. I got a call to collect him from hospital. Not from the ward with it's convenient parking. Oh no. I was given a set of directions more complicated than a trip to Outer Mongolia and ended up in a sort of delivery yard with no visible parking. Had to abandon the car and make my way to an exceptionally well hidden 'Discharge Lounge'. Why do hospitals do this? Is it some sort of test? If you can get out, you must be well enough?

    I found it eventually. After a wait for medication we set off home. Andrew was glad to be out, but apprehensive. And sore. Once home, we inspected the scar and read through all the discharge instructions. Then I went shopping for supplies and he phoned his friends.

    Two weeks later came the oncologists appointment. By this time I'd done a lot of research and spoken to everyone I knew with any sort of medical knowledge. I knew that kidney cancer at this stage was more than likely terminal, with a life expectancy of between 1 year and five years for the lucky few. I didn't know if Andrew had done the same, and was too scared to broach the subject. His friend Chris went with us to the appointment. The doctor was really nice. She took us through all the options. When she got to the part about likely outcomes she also mentioned a new drug called Sutent that was showing promise. It was strange how all three of us latched on to the possibilities of Sutent, and more or less ignored the terminal prognosis. Cowardice on my part, and probably Chris's too. But for Andrew it was hope, and I was to learn the paramount importance of hope over the next few months.

    Two days later he heard that he hadn't been accepted for the Sutent trial.

  • FormerMember
    FormerMember in reply to FormerMember

    Dear anneah

    been reading your brothers incredible journey up to now.

    Cant believe he was turned down for Sutent in 2008. My husband had a nephrectomy in April 2008 for a very very rare kidney cancer and given hope, but it returned later in the year and after a bit of a fight he was given Sutent, it worked for about 2 years.

    Dont want to go on as to what happened next as this is your story, but its on my profile.

    Kind Regards jmd xx

  • FormerMember
    FormerMember in reply to FormerMember

    Thanks jmd. The reason given at that stage was that they had enough people with his profile in the trial already! So we decided to make a fuss. As it turned out, the first bit of fuss we made produced results. I was all geared up for contacting everyone from MP's to newspapers when all we needed to do was talk to the oncologist. She said that was a rubbish reason, made one phone call, and lo and behold Sutent was available!

    So we picked up the prescription. Incidentally, why, in a gigantic hospital, do they have so few people dispensing prescriptions? Seven booths, only one of them manned, massive queue and only four seats for waiting, and I rather suspect only one pharmacist with lead weights attached behind the scenes.

    The pill regime was a feat of organisation in itself. Further down the line we had to resort to a spreadsheet and a very fancy dispensing box, but at that time the system consisted of various medications laid out according to time to be taken along a substantial chunk of kitchen work surface.

    This was in October, 2007. From then to Christmas things appeared to go well. He gradually recovered from the operation and even managed a lads holiday in the sun. The sutent side effects were varied and interesting, changes in hair colour, beard colour and skin colour, but he mostly took these in his stride. The skin dryness and cracking and digestive problems were less pleasant, but he managed. The only thing that was starting to cause him more concern was back pain and increasing difficulty moving. He decided he needed a new bed.

    Now one thing you need to know about Andrew was that he had expensive tastes. Nothing but the best would do. A critical illness insurance policy paid out around this time. A dream convertible Saab followed soon afterwards and the next thing on the list was a bed to eclipse all other beds! This thing did everything short of the ironing. It even had a TV in the footboard. I can't honestly say that these things were strictly necessary, but I couldn't really blame him for wanting a few luxuries.

    Just before Christmas, or maybe soon after, a scan revealed that his tumours were static or shrinking and we began to allow ourselves a little more hope.

  • Anne, I am so pleased you've been doing this,  as even in a very short while, we on here did get to know and love your brother, he was so concerned about each and every one here who chatted to him....it's wonderful to 'know' him better, I for one will never forget him.

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    Evening all,

    My song for today is Enrique 'Hero' http://youtu.be/HnOlw8HdVIw

    ((((((((hugs))))))) Anne.

    How I wish I could bring all our loved ones back.

    Heartfelt Love to you all.

    Maryxxxxx

  • Sorry, all, I missed 3pm, but 'Smile' is on my list for today......as we are just beginning to again! 

    Moomy

  • FormerMember
    FormerMember in reply to moomy

    I really tried to post earlier, but couldn't find this thread. Still not terribly comfortable with the new site, I'm afraid.

    Anyway, my very late song choice for today is 'Layla' by Eric Clapton.

    Have a lovely weekend everyone.

    lots of love from Anne.x