Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Are you allowed to joy ride St Johns Ambulances?
Just joking, you've got a bit of time to enjoy the wine then. Best way is have another and take this as a sign that you should.
I have finished my calls for the evening and had my coffee and am thinking about a pudding now - guess what - ice cream - yeh! I shall have a scoop or two of clotted cream, chocolate, vanilla and cookie dough. I think that'll be enough. I like mixing them up and having a crumbled biscuit on top a sort of home made sundae.
Pain is very managable now that the day is almost over - bit of sods law there - oh well, maybe tomorrow it will be loads better. I want to get to the weekend in a position to drive again and thenget my freedom back next week. Then at least I will only be a week behind schedule in this regard.
What plans has every one got for the rest of the week and the weekend? and are we all i place for our friday dance this friday - what time shall we all go etc.
Andrew
Hi Ladies.
I've been out today (Hooray). Went to my painting class this morning, then out to lunch with a friend and a wander around a few art shops. Now my back is agony and my throat hurts from talking to much. Worth it though!.
Sue: I'm so sorry to hear that your friend has not been good - and you have been down. I'm sending you some happiness.
Dianne: I hope you are well. What have you been up to today?
Betty: Hope your feeling better. How many more treatments have you got?
Mel: Are you OK? Hows things going?
Andrew: I am very worried! Please let us know how your feeling.
Luv
Christine
Hello,
I haven't been on for the day due to the fact that AOL are crap - they locked me out when they disconnected me and its take 24 hours to get my connections back - sorry everyone but I had no other way of getting online.
Finally now back having had to re negotioate my contract with aol and at least now am back here.
Sorry for any worries but nothing I could do.
Wnet to oncoogy review today and now back on the sutent for the 2nd cycle and at last am back on the drug fighting the cancer and not the side effects!!!
Onc Doc is happy with what is happening and we are reducing the steroids now and increasing the nerve blockers. Yesterday, like Christine, my back was in uproar but today has been a bit better. Still aches like hell after the day but managed to get out for tea and get home again. Need to rest it tomorrow but now wanting to get back behind the wheel again. Doc is happy for that to happen when feel like it so am planning for this to take place over the weeken with a bit of luck!!
Doc wants me to have a holiday and stop thinking about going to work until I have done the driving and holiday bits - he suggests one traget at a time will be plenty rather than 3. I will have to have my blood pressure checked weekly from now on and weekly kidney function blood tests - apparantly my desire to do too much has resulted in raised potassium levels and thesde need o be reduced.
So, pretty good news all round I think, just need to calm down a bit - lol.
How has today gone for everyone else and are we dancing in the am?
Andrew
ps will answer pm's shortly
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