Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    Good morning all.
    Sending you all my best wishes and hoping that you all have a good day.
    I don want to winge BUT!..........I have developed a sore throat, achey muscles and tired eyes, and generally feeling rotten. Have spent the last few days running back and forth to my my mum in hospital. Phoned hospital this morning and they said she is much recovered and they are looking to discharge her today. Thats a good thing, but it means I have to charge back to the hospital, collect her, sort out her meds and get her settled at home......making sure she has something good to eat. Mum likes kitchen gadgets and a couple of years ago she gave away her build-in cooker, her hob and her microwave and instead she has seperate steamer things and an electric conduction ring. None of this is very easy for me to use, consequently cooking a proper meal in her kitchen is NOT EASY and I dislike it terribly.
    My brain is feeling scrambled and Im in that fuzzy twilight world of virus.

    Want to do so much, but will probably end up doing nothing (apart from sorting mum out).

    So..........another cup of coffee then off to the hospital. I'll have to try and sort out all her new meds...........that will be like the blind leading the blind........lol.

    One the bright side, her oncologist said that her last blood results were encouraging and her abnormal white cell count has reduced from 140 to 90 which means she is responding well to her latest chemo.

    I had my brain scan yesterday......it was an MRI scan. Never had an MRI before.......what an experience......they put big headphones on you and play your choice of music, (which was nice) then put you inside a 5ft tube for the scan. You dont feel anything but the noise is like being in the middle of a road with piledrivers being used either side of you. It was so loud that I could hardly hear the music in the headphones..........which was 'Dark side of the Moon'..........rather appropriate for a brain scan I thouht.......lol.

    No results were given to me. They just said that if I didn't hear from my GP I was to contact him in about 10/14 days. I'm sure all must be fine as I'm feeling fine (except for the cold virus).

    Enjoy the day.

    Christine
    xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember
    Liz, thats brilliant news about the reconstruction, its about time you had some
    good news, i hope everything goes well for you.
    Christine, im glad your mum is feeling better and coming home but sorry its a
    lot of extra work for you, its been one thing after another for you since you got
    back off holiday, i hope the results of the brain scan come back ok.
    Sue, im thinking of you and your friend and hope she is comfortable
    Love and hugs to all on here xxxxxxxxxx
  • FormerMember
    FormerMember
    Hi everyone.
    Got home at about 8pm. Mum is finally sorted and comfortably back in her own home, so I'm hoping she gets a nice nights sleep in her own cosy bed.
    I would like to say a big thankyou to the Macmillan Nurse at the Weston General Hospital who helped me sort out Mums home care. Because mum had gone into hospital, her home care service had been cancelled. The care company were not very helpful and the poor overworked nurses on the ward didn't have a clue how to sort anything out. Finally, when I was on the verge of a breakdown, and wanting to swear at someone, I decided to ask the Mac Nurse for help. She was so nice, and above all, so helpful. She had all Mums details on her file, (something the hospital could learn from) she telephoned the Social Services and got everything sorted in just a few minutes........with no stress or hassel. I was so releaved that for the first time that day I had a smile on my face. I really think it might have ended in tears if Macmillian hadn't been so wonderfully efficient........Thankyou, Thankyou, Thankyou.


    Liz: I'm glad to hear that your doctors are planning something to help sort out your problems. I quite often have the problem of one boob bigger than the other, as every time I put on weight or lose weight, my real boob goes up and down but my prosthesis remained the same size.......very frustrating.

    Going to get some sleep now. Hope you all have a good nights sleep too.

    Christine
    xxxxxx




  • FormerMember
    FormerMember
    Hi everyone,
    My song for the Friday dance the c**p out of cancer will be the same as Liz has chosen
    Stevie Wonder 'Happy birthday to ya'.......Hope you enjoy your birthday tomorrow Liz.
    Love and Hugs to all on here xxxxxxxx
  • Liz, this is a great day to include another tune to sing happy birthday to you, so my choice for 'Dance the c**p out of Cancer' today is the very same tune, and my wish for you for tomorrow is a very happy day....

    love and hugs to you all on here....Sue, hope your friend is comfortable, Dianne, have sent you a p/m, Christine, hope you aren't doing too much, and yes, I know how noisy MRI scans are....hope you are feeling better in yourself and your Mother is coping safely at home now....

    Moomy

  • FormerMember
    FormerMember
    Hello everyone.

    Liz: I hope you have a truely wonderful day tomorrow.
    For todays 3pm 'Dance the C**p out of C' I would also feel honoured to join in with Liz and Dianne and Helen in singing:( http://www.youtube.com/watch?v=FchMuPQOBwA) Stevie Wonder's HAPPY BIRTHDAY TO YOU' specially for Liz.. May your day bring you much delight,and your year bring you lots of joyful times, peaceful times, Sunshine. happiness and friendship.


    Christine
    x
  • FormerMember
    FormerMember
    I hope you are starting to feel better liz , 21 again hey ! and that goes for every one else as well .
    My song today is Yesterday it just seems appropriate at the moment .But hopefully it will get better .
  • FormerMember
    FormerMember
    Hope you could hear all the singing Liz. I certainly enjoyed it. So did my neighbours, as I turned it up so loud.

    I'm sure everyone realises that next weeks 'Dance the C**p out of Cancer' is a VERY VERY SPECIAL ONE!!!!!! and I think I'll dance to the same song I did that very first day. Guitar

    My wish (and Andrews wish) is that more people join in and find out for themselves just how powerful music can be. I would like everyone that is sharing this same train (as one brilliant person put it on another thread), to all get into one carriage, just for 3 minutes, at 3pm each Friday, and through the power of music, help themselves and support others.

    Happy Birthday again to you Liz.

    Christine
    x










  • Liz, Do have a wonderful Day tomorrow, I will sing 'Happy Birthday' to you but am not tto sure you'll hear it, but at least you'll know I did it! love and big hugs right back to you....

    Moomy

  • FormerMember
    FormerMember
    Happy Birthday to you, Happy Birthday to you,
    Happy Birthday dear Liz, Happy Birthday to you.
    Hope you have a lovely day xxxxxxxxxxxxxx