Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Helen,
you never stop, don't know how you do it - I couldn't hang a door before I had cancer so chances of doing it now are pretty nil - lol.
Not sure whether the news about the growth is good or bad, 1 mil doesn't sound much does it but if waiting gets more chances later then thats probably the way I would go as well. I hope it all works out for you both.
Sue,
I saw that post - thought you must be joking (or at least hoped you were). So I passed by on the other side of the road and pretended not to know you very well - lol.
But some poeple must like it - and I profess I cannot hold anyone responsible for thei teast in music, they use the stuff the same way as everyone else, as a way out of where they are now, and that can never be a bed thing to do. I'd just use a different form of transport!
Off out to dinner shortly, another 50th birthday do. Sounds like I am always out for dinner doesn't it and then comlaining about pain the next day - I must be some form of ungrateful old whiner!! Its not really like that I just want to makle the most of each opportunity that comes along - honest guv !!
So, see you all later, hope you have great evenings and catch up tomorrow,
Cheers All,
Andrew
xx
Moomy
Morning Christine
baby sitting, errrm, not for me ta, look at 'em and then give 'em back - lol. I am sure you enjoyed it really though!! Enya used to be in a group called Clannad - there biggest hit here I think was the "Theme From Harry's Game" it was a kind of Irish set detective story that was on BBC a few years ago. Very beautiful piece of music as I recall. The music they both make is very quiet and relaxing, I can't say its really my taste but occasionally I like one or two tracks from them both. Look them up on the internet and you should be able to listen for free to some tracks before you decide or not whether they are to your taste too.
last night was nice again - the place has been taken over by Raymond Blanc as a kind of Brasserie. Food was pretty much what you would expect and very nice. Company was mixed, some the "ladies who lunch" and the very spoiled daughters got on my nerves - how can a 14 year old send a steak back as "I asked for medium to well done and this is just medium" - I wanted to slap her into next week and tell to be bloody grateful she was out with her elders and much betters and shut up - but I got kicked under the table and told to be quiet instead - probably better advice actually !!
At least Elaine liked her present and she was on top form, so I ignored the "wrong" guests and talked to the "right" guests instead.
Left about 11 ish to come home as pain was a bit strange yesterday and never really went totally away other than sitting down. So was quite tired by later on. I hope today will be a bit better as getting pain every tome you stand up is quite tiring for the whole day. This morning I have stayed in bed until the first set of pills are out of the way and then get up slowly, but its the anticipation of the pain hitting that gets to me.
Anyway I did have to get up eventually just to go to the loo and it was all that I thought it would be - i.e. painful !!!! Anyway done now - sitting on sofa and getting more comfortable. I am going to have to change the time of tomorrows appt at the oncology clinic though, the time was set for 10.10 and there is no way on earth that I can make that time without abject pain and misery if I base it on the last few days experience so I am going to put it back an hour or so if I can.
My sister has agreed to come round and get me for the appt as I don't really feel I can do this on my own at the moment. I just really, really hope that all this is worth something in the end and that the end result is less pain in my back - I shudder to think how I will feel if this is the way forward from now on.
Anyway, there we are. we are here and that is all I can deal with. I am going out for tea on Thursday with Chris and I think Richard is going to try and come too. Hopefully we can look at some holiday options at the same time and give me something to cheer me up properly. Also, hopefully, the docs will have some decent news for me and "tell me something good" (song line there for you all). At least I should be back on the Sutent and fighting the disease rather than the symptoms.
That’s my start to today (and finish to yesterdays) done and dusted - how are you all doing?
Cheers
Andrew
Christine (he said looking very carefully to make sure he was talking to the correct person),
you must be blessed with the sun - it is a bit cloudy here but at least not raining, so not too bad.
No its not horrid to do what you did, but don;t you just love it when you spot your sarcasm pinned to the wall behind the targets head - makes it all even more worthwhile - lol. I think thats why I stayed quiet, it wasn't my do and I like Elaine so discretion being better part of valour etc.
Just going to try and post this and then re-boot - the laptop seems to have frozen partly - not sure why!!
Andrew
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