Are friends and family ever enough?

FormerMember
FormerMember
  • 4596 replies
  • 5 subscribers
  • 2387240 views



Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    I wonder if we could get the webmaster to send a sort of mass messaeg to evryone who is registered - just it would go to people grieving as well and stuff like that - not sure how to go about this - we nee some brain power on it - i.e. not mine - lol.
  • FormerMember
    FormerMember
    I'll think about it too Andrew.
    Maybe we should ask Dianne how she feels about it. If feel that she'll agree, dancing for your lost loved ones, friends or family ect can only be a good thing.
    However I may be delusional and very wrong - someone tell me truthfully please.

    I'm going to do some ironing for a bit, whilst I have a modicum of energy.
    (Yes I know my spelling is probably crap - but I cant be bothered with spell checking - Im not really illiterate, I just blame the chemo brain).

    Dianne, what do you think? honestly and truthfully.
    Luv
    Christine
  • FormerMember
    FormerMember

    I'm with you Christine on this one as all would be doing is dancing for me - I have lost no-one but I am dying so it would be for me from me. As you say though, other people may feel differently, all I can go with is the feeling deep wodn that music makes a difference to everyone, it brings out thoughts/feelings/memories like nothoing else can and moving to to it in whatever way possible only serves to accentuate those emotions.

    I am not sure whether I can articulate this very well - its all an emotive thing, so Dianne, what do you think?

    Andrew

  • Just a speedy hello, have had probs with the internet connection at daughter's, now home again, sorry you had some painful 'rubbish' time, Andrew, I gather.....hope everyone else is coping? and you now have a better knack of sorting the pain out.....

    Moomy

  • FormerMember
    FormerMember

    Hi Helen,

    yes it was a bit rubbush for a few days, talked to doc and increased the nerve pain meds (gabapentin) and I think that increase and the reduction of the radiotherapy flare up have kind of met in th emiddle almost so today I feel alot better and the pain was easier to bear.

    how has the trip been - did you get eveything sorted that you wanted to? and what do you think or our "have a dance" thing?

    Andrew

  • Andrew, anything a bit insane sounds good to me! We are totally whacked, having as usual, done too much......but every bit helps......will get back on here later to fill you in with all.....

    Moomy

  • FormerMember
    FormerMember

    Ok,

    catch you later when you've had time to get your breath back and sorted.

    See you soon, all the best.

    Andrew

  • FormerMember
    FormerMember

    Just listening to a CD on the lap top, sound is not the best you can get but its close so I can control it. One of my favourite artists of all time is Joni Mitchell and I also have always liked Herbie Hancock. So when Herbie brought out a set of Joni's songs, well you just have to don't you?

    Anyway I haven't really listened to it properly since I got it due to other preoccupations lately so I am here listening now. There are Herbie's interpretations of Joni's songs, some familiar and some not so, with his picks of other artists to sing and play. Corrine Bailey-Rae, Norah Jones, Tina Turner, Leonard Cohen to name some. All people who's individual music I really like and I have just been blown away by Tina Turners' version of "Edith and The King Pin" - I would not have thought she was capable of a vocal peformance like this. I am amazed that anyone can take a song as personal as these, that are so tied to the writer, and make you believe these stories belong elsewhere. So strange yet so nice.

    So, a little review for you music lovers out there, maybe my own opinion but its a great album - "River - the Joni Letters".

    Cheers

    Andrew





  • Andrew, got the laundry done now, got a loaf of bread 'doing' in my bread maker, something lined up for dinner, completely unpacked.....etc.....

    Well, blow by blow......, we made and hung another door, just two left to do now...I did the garden, cut the grass, took the lass to the garden centre and found some plants, moved some already in but in the wrong place (how do plants DO that?), We started tiling the downstairs loo, finished some odd jobs in the kitchen and that on top of me auditioning and then taking her to clinic. (audition- will know in May) Her consultant still says he wants to watch and wait, though the nodes have got the tiniest bit bigger, 1 millimetre or so, which he thinks is not worth bothering about yet, so we wait another 3 months....He wants to try her last possible chemo, a Gemcitabine based regime, if disease definitely progresses, then he hopes there will be a trial into the use of donor bone marrow in Hodgkin's, said there is planning for one, since she failed her own stem cell transplant in 2005.

    One way and another we are bushed!!!!

    Moomy

  • FormerMember
    FormerMember
    hi andrew ............and dianne and christine and moomy

    just had to tell you i wound mick ( brumigen) up on his tag last night ..i told him i was listening to chris de burgh and he went 'ape'!!!!!!!!!.........it was so worth it for the reaction i got !!!!!..........i was actually listening to enya and clannad!!!

    i have just got back from an afternoon with an ex work mate , been playing with her puppy , he is 14 weeks old and called stan .........a golden labrador .he is gorgeous............and she gave me a bag of books to bring home and read , so im well happy.

    oh and im not 'mad ' but i am 'daft ' !!!! and long may it continue ..........i am an eternal child !!!!!


    got to go and start a 3000 word assignment now on autism and sleep .......yawn !!!


    have a good evening all of you , and andrew im glad your day started out better than yesterday


    suexxxxxxxxxxx