Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
Sue, Rosy, Christine and Dianne,
much and many thanks for your messages this morning they are very welocome. I have just spoken to the Doc and she has advises increasing the Gapapentin (nerve blocker) for a few days as she is convinced that this is a result of the radiotherapy irritating the nerve endings in my back. So they will go up for the next few days, we should know by wednesday/thursday if that works and so just another couple of days excruciating pain to go - how lucky am I - lol.
Sue, keep skipping and having fun and joy - I will take my vicarious pleasures from you in that regard - I never want anyone else to feel they can't mention fun and happy just I got down a bit "We have been lifted" to quote the song!!
Dianne, thanks very much for your thought and as I may have the short term answer to the pain it has already started haing the placebo effect I think.
Christine, lovely hugs - thanks you - they are here and helping.
Rosy, all the best for your treatments for the day and catch up later, I hope they go very well for you.
Thanks to each of you
Just so long as its not raining in out hearts - lol
Sue, this strange pic of you leaping and skipping about whilst typing on the lap top just sprung into my mind and won't go away - lol
Kind of leap, type, leap, type - all one leg then one finger at a time....
probably maligning noth your skipping and typing abilities at the same time - hope not - lol
eknjot
hi andrew ...............you made me laugh so much ............i nearly choked !!!!
i love the skipping smiley!!!
i am very good at multi tasking , like most women !!!!!
and if i can type and sing and skip at the same time then it justs tells you what an incredible person i am ............hee hee !!!!!
if my fella had seen me , he would have shook his head and just looked at me with pity !!!!!
from the
amazing ' skipping ' fantassimo suexxxxxxxxxxx
was listening to some good head banging music !!!!..........def leppard 'pour some sugar on me ' and ;lets get rocked '...............relieves the tension and the stress !!!!..............then i put some enya on cos i was too hyper !!!!!
gonna get some lunch now and do some work before my fella gets home and comments on the mess in the house !!!!!
talk to you later mate
suexxxxxxxxxxxx
Hi Dianne,
the 2nd set of drugs seem to be having the same effects as they did yesterday so it should now start to get easier through the afternoon and evening which is a godsend from my point of view.
Only wish there was some way to "double" up on the morning intake but I know that can't be done so no other way but "grin" and bear it - lol - i think that wold be a rictus grin at the very least !!
Are you having a good day, anything exciting i can use to cheer up my dull little life?
me waiting to knick someone else's fun ideas!!
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