Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    No its not easy and never will be, we put our brave faces on and try to make light of what we can but it will always reach a point where that is no longer a tenable option - I feel lucky that I am no-where near that place and hope that a long time passes before I am but when you read others stories it is alwyas the present and close danger.

    I am still looking for the positives in everything i go through, I thank god that none of my friends and family are in the position I am in and that is a blessing that they are not. I don't like to think too much about how they will manage going forward with me but am sort of training them to equip their hearts and minds for wht is to come without at the same time being some form of doom monger or depressive sod. Tight rope walking would be easier I think - lol

    I will maintain my positive attitide as long as I can, even if just for them.

    Andrew
  • FormerMember
    FormerMember
    I am pretty sure that it is friday but feel free to discuss this as I obviously can't be trusted due to the fact that I have just gone through my whole morning routine a good 2 hourse early.

    How did this happen? I have no idea, when I got out of bed I am convionced it was 8.30am in the bedroom, by the time coffee had been made and the days pills doled out into their box it had become 7.20 - where? how? Its a conspiracy, I know it is!

    Now I could look upon this as a brilliant opportunity to gain an extra 2 hours of today that would not have been there otherwise or I can go back to bed and wish it never happenend.

    I think I will go for the former, that means I get longer after the pain subsides to enjoy whatever the day brings, seems that if my body wants a little more time I may as well see it through and if it means I am knackered early this evening then I will know for next time just to go straight back to bed and not bother!

    Ltes see what happens - does anyone else loose/gain time like this? Am I alone here? All these questions must be answered and more on todays episode of

    "Cancer" - A soap Opera!

    Lets see how the story unfolds and how our hero overcomes bowel intransigence and other all round fun stuff. - lol sorry everyone, just feeling that way out this morning!

    Have a great one to all who read,

    See you all soon.

    Andrew
  • FormerMember
    FormerMember
    hi andrew, thanks for that, its good just to have a moan, even on the comp.
    hey dont worry about proof reading. my fingers are able and i still press wrong buttons when typing , then only realise its wrong after ive sent it. !! hehe, am also the worst speller in the world, i can say the word but cant spell it.

    Ant is off school today due to his back ache and tiredness. When i spoke to the comm. nurse last week she had said not to rush ant in to school as his body has been through so much. he has done well to go 4 full days. i dont want to wrap him in cotton wool but hope i dont over compensate by laying down the law and pushing him too hard. i think not and hope he understands. i feel often its just as important for me to see him go to school as it is for him to go.
    much love ros x
  • FormerMember
    FormerMember

    Hi Ros,

    good to hear that Ant could do 4 days thats a pretty good achievement as I well know backache is horrid because you just don't know where to out yourself to get rid of it or at least ease it a bit.

    I was just talking on the phone to a friend about going back to work, its a victory to me to do that as it makes me feel i have achieved another hurdle. Next week should be back on sutent part 2 so again another little hurdle to achieve.

    I know what you mean about Ant going to school makes you feel good, my sister says the same aboiut me going to work again, she thinks it will be good for me bit she also feels it will be good for her to see me getting closer to the person I was rather than am, if that meakes any sense at all.

    Anyway its great to hear from you and that things are progressing albeit not perfectly, best from me to you and Ant and may e next week his back will be able to do the full 5 days - lets hope shall - have a great weekend and speak soon.



    Andrew



    ps hope no spell errors in that one - but hey.

  • FormerMember
    FormerMember

    The Range Rover is here, made my day!!!!

    Will now be able to waste loads of money on it and book the off road course and all that stuff I want to do, can't wait - I feel like a schoolboy with a new toy its just brilliant.

    Sorry if no-one else cares (actually not sorry at all) but I feel good,

    Cheers

    Andrew



  • FormerMember
    FormerMember
    hi andrew,
    just been catching up, so glad you are having a good day today, must be the extra 2 hrs, you enjoy your new toy and have lots of fun, but take care
    dianne xx
  • FormerMember
    FormerMember

    Hi Dianne,

    yes its been a good day so far, I think th extra 2 hours though will get me back later on thoug - its and extra time putting strain on it I suppose and i can feel it a bit now. Going out for dinner tonight so will have a lay down about 6ish for an hour to make sure i am fit for something!!

    Really looking forward to seeing the car, its taking us out tonight so should be fun.

    How are you doing today, plans for weekend at all?

    Andrew





  • FormerMember
    FormerMember
    hi andrew,
    its good that you have something to look foward to, i havent really got anything planned for the weekend, am meeting a friend for lunch tomorrow, weather not very good today, i tend to hybernate in the cold, but i expect someone will come to visit they usually do, hope you enjoy your dinner tonight, and the car of course, have fun
    dianne xx
  • FormerMember
    FormerMember
    I will and you too.

    All the best,

    Andrew
  • Hey, Andrew, know how you feel, new toy, eh? I bet you are out enjoying it as I type.....have fun, it is soooo good to experience that high ride, you can see over those insignificant cars.....! hahaha! (what colour?)

    Moomy