Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.
Macmillan admin
Hello everyone,
this is my topic to start and its a question that has been burning around the back of my mind for the last few days.
I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.
There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.
Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.
First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,
I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).
Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.
Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;
- can you use up and wear out your friends and family with this thing before you need them most?
Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.
Cheers
Andrew
bob jk said:
Hi everyone
Raise a glass for me tonight, both tumors have reduced in size. One has reduced by 2cm and the other has reduced by 1 cm
I will know more details on friday but things appear to be going in the right direction. I am sure that positive thinking has helped in all of this. It is so easy to spiral downwards whilst going through what we are going through, I have nearly done so several times. I then look at my family and the kids and that gives me all the fight I need.
This is one fight I will never give up.
Post 126 posted on 16 April 2008 at 20:06:49
Downunder said:
Hi Bob - what wonderful news. I have been reading this thread for the last week or so and was delighted to hear of your positive response to sutent. My Dad was diagnosed with Kidney cancer in October last year that had spread to his lungs. He had a kidney, two ribs and the lower part of one of his lungs removed only to have a follow up scan and find that it had spread to the back of his stomach and throat..... Sorry my terminology is so basic! He is in Aberdeen and his Oncologist has prescribed him sutent, however, he refuses to apply for funding so Dad has had to pay for his first lot of sutent. I am now working with the Pamela Northcott Fund to get funding as he cannot carry on paying around 4,000 pound per month indefinitely. He has just started his second course and has a scan booked for early May. Anyway, we are hoping for wonderful results like you have had and I would like to thank you for sharing your story and experience as it really does give hope to others. I live in Brisbane, Australia so I will raise a glass to you tonight - it's a bit early now for a drink! Louise x
Andyrh said:
Hi again,
sorry but bit of a rant now after all the good stuff! I just read Downubders post and it makes my blood boil - how can a doctor recommend a drug and the not ask for funding for it - what the hell sort of response is that!!!!!!!
My doctors were great = they applied immediatley and got turned down and trhe re-applied and got the funding - this drug is very expensive and why people should be expected to pay for the NHS all their lives and then when they need it get told to sod off!!
Downunder - i am so sorry but please fight for it - when you read the threads on here of various people who are lucky enough (like me and Bob and others) to get Sutent and see the results that many achieve it must get you down to not have it available to you. Many people have said they have fought the appeals process and won so please keep trying or get another Oncologist who will!!
Ok rant over a bit - Bob soz to spoil the sho here if I have but you an d me both know how hard this is and we want all the weapons available to help our fight and the same for everyone else.
Andrew
Hi again,
just rave and rant all you want its what we are here for sometimes - lol.
I would love to hear from you about Ants ongoing stuff (good and bad) and you know will criticise you or try to stop you in any way.
It is hard in from of strangers to vent your feelings, hell its hard in front of friends too,
I have been avoiding situations with friends of friends for just that reason but am slowly expandng my socialising again - miss the vino though as I just go to sleep in front of people if I have a glass (bugger). At least my friends kick me under the table to wake me up god knpows what someone else would think. My local two restaurants have become used to me nodding off occaisionaly and don't think am a popped up old geezer anymore.
But curry in a different place this evening is the callling, arranged by my sisiter, and only one person don't know so am looking forward to it.
I hope that things will sort themselves soonest in your head for todays problems at least, its weird when good news becomes hard to see, we get used to bad stuff and forget how to handle thr good bits I think>
Just my thoughts to you and let me know how things go and if I can hjelp at all you know I will.
Cheers
Andrew
My typing fingers are not doing well today - its so easy to miss one letter and change the tone of something entirely.
Shame you can't spell check these before you send them! without cpying to word and then back again (which is what this anal retentive does on longer pieces, and still get 'em wrong).
Antmum - sorry.
Andrew
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