Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    Dianne Hello,

    yes I was pleased with today. I thought it was going to be really horrid when I woke up and got up and couldn't move without literally crying out. Then about 9ish it tailed off and has not really been bad all day.

    At the hospital I saw my nurse specialist and we have sorted the next oncology appt for next week with a view to starting the 2nd cycle of the sutent - will be good to get back to fighting the cancer instead of these other things!

    I have decided against the house visiting/hunting on saturday and am jusy going to meet up for lunch instead and look at the pictures. I could forsee myself asking each of the house owners if I could just sit down every 10 minutes and then there was the thought that the nurse may be round for the enema on sat morning and that doesn't really go woth visiting complete strangers houses and viewing them does it!! - lol

    How has your day been?

    Andrew

  • FormerMember
    FormerMember
    Myke!!

    hello I didn't see you there, no probalems at all. just pleased I could do a little something to help. I hope that you are feeling a little better about things now and had a much better day.

    just keep going each day and it will all begin to get easier, there will be bad and good days but just keep thinking of the good things and the bad no longer matter so much - then you can always shout from the hills and none of us will care - we may well join in too!.

    best to you,

    cheers

    Andrew
  • FormerMember
    FormerMember
    Does anyone know if clotted cream flavour ice cream is ok to eat with MST and all the other drugs I do of an evening?

    It tastes ok anyway - lol

    My sis has some friends up from london tomorrow so we are going out for tea/dinner after I have done all the hospital stuff. This will my first trip out for a while so am looking forward to it - I get to choose the restaurant and they get to pay - ideal really!

    Should probably go to bed when I get back from the H but we will see if I am tired enough first, perhaps do the crossword early and see if that has any winding down effect.

    have now downed my 3rd lot of ,ovicol and still no movement to speak of, things are looking bleak in that direction for me - oh poor poor pitiful me (I should make a song lyric with that in - no-one else will think of it).

    Is it just me or does anyone else completely loose track of what day it is all the time, is it the morphone or just not doing anything and each day blends a little into the other?
  • FormerMember
    FormerMember
    hi christine,
    glad you had a good day, we went in town to get curtains for my daughters dining room, we went in every shop we could think of, some twice, and she still couldnt find any she liked, my grandson got so bored he had a temper tantrum on the shop floor, so we came home with nothing, i said if she wants to go tomorrow, she can go on her own, said ill babysit,
    dianne xx
  • FormerMember
    FormerMember
    hi all,
    im so slow on this keyboard (typing with one finger) by the time i have finished you are all on next page lol,
    dianne xx
  • FormerMember
    FormerMember
    which way to the next page?
  • FormerMember
    FormerMember
    Hi Dianne, Its all good fun. I now find I have infinate patience,understanding and sympathy when I see a mum having to cope with a tantrum toddler. Just a shame I never had the same patience when my two, especially my eldest, used to roll on the floor screaming EVERY time we went out to a restaurant.
    I can now see it for what it is, just another stage in life, and enjoy it.

    xxx
    Christine
  • FormerMember
    FormerMember
    ha! ha! very funny andrew,
    dianne xx
  • FormerMember
    FormerMember
    well you got there first at least - no-one else on this oage on my laptop!!!
  • FormerMember
    FormerMember
    I,ll let you all know - Im still down in the shed (summerhouse). Pretty stupid thing to do really. My feet are freezing, its semi dark and i cant see what im typing, THE GNATS ARE BITING AND I THING THE SPIDERS HAVE JUST COME OUT TO PLAY. AHHHHHHHHHHHHHHHHHHHHHHHHHHHHH.