Are friends and family ever enough?

FormerMember
FormerMember
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Andrew, who began this thread, sadly died in September 2008, but his friends wished that his thread remain open in his memory, particularly to promote Andrew's idea of 'dancing away cancer' each Friday at 3pm. Please feel free to post your dance tunes every Friday in his memory.


Macmillan admin


Hello everyone,

this is my topic to start and its a question that has been burning around the back of my mind for the last few days.

I always thought that having a small group of very close friends was enough for anyone, ok you always have work colleagues and other acquaintances but the main group of my friends has remained within a steady little group of five people for nigh on the last twenty years. We have shared almost, if not all, of what life can show you over that period and nothing has every served to tear us very far apart for long.

There have always times when partners/other friends/own family have been more important to us and always been times when we are more important to each other and perhaps have taken some of this for granted and assumed that it will always be thus. I have reached the opinion that I have for certain.

Then you get cancer! Things change I suppose but I have cancer and all of a sudden things are important to me that weren't before and they have an impact on others which were not anticipated.

First I need to say that my friends have been great through this initial part of my illness and there is nothing to say that this position is going to change immediately - rather its me that seems to be changing and not them. I am having doubts about my ability to cope with what is happening to me and what may happen in the immediate future, I am doubting my friends willingness to hear what I have to say when they ask that questions each day "How are you?", I don't want to say "OK thanks" each time when I am not OK,

I want to say "it bloody hurts" and "I don't feel well at all" and "I think its really unfair that I have this disease and you don't" (that one really stings in your head and even if its not at all true, sometimes you can't help yourself thinking it even fleetingly).

Then after that I get guilty about having the disease and having those bad thoughts that seem to go along with it all. I keep thinking that I am asking too much of them now in terms of emotional and physical help and what if their well runs dry later when I need them even more than I do now and they have nothing left to give me. Then I think that that is a really selfish "me, me me" attitude to have and that gets me really down - can you be guilty about a guilty thought which in itself is only a selfish thought about feeling guilty - just how big a knot is that one to unravel.

Anyway before I drive all away completely with this "hymn to the depressed" that brings around the original thought I had;

- can you use up and wear out your friends and family with this thing before you need them most?

Thanks for reading (if you managed to get through the dirge without laughing too much) and any thoughts are appreciated.

Cheers

Andrew



  • FormerMember
    FormerMember
    Hi Grandpa,
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    Just click on the above link, and it will take you straight there.
    Then click on Download. I'ts all free!.
    Make sure you say NO to saving as your default search engine. It will then save to your internet screen, as a toolbar.
    Takes some messing about with, especially if your like me and not a wiz on the comp.
    Good Luck.
    Feel free to practise them on us.
    Luv
    Christine.
  • FormerMember
    FormerMember
    Hi there Liz and Sue,

    I am in all ways of pain this morning, the nerve in my back is on fire and every movement is like hell on earth. I have just spoken with the pain doc and she is going to consult with my GP about what we can do. The problem is that the ideal drug effects my remaining kidney and also gives me severe twitching ro thats out unless its the only thing to do. I can't tolerate any non steroid nerve blockers due to the the fact that they were also affecting my remaining kidney in a bad way and had that effect quite quickly. There is a another drug (Amyltryptilene) which may work if piggy backed ontop of the Gabapentin for a short term so that is what she is going to consult with the GP about. That has its problens though with all the other drugs I take.

    So a bit of a mess today but I just can't stand the level of pain for too much longer, I cannto sit, stand, lay down because each little pressure trips off the pain - its bloody aweful and I don't know how to cope with this.

    So I am waiting for the doc to call me back, she will either get the GP to come round with the new drug (if there is one) or just to let me knwo what else may be aailable for me. One result could be a trip back into hospital, at least there they can give me much stronger pills until this goes away. We still think thaty this is a result of me falling over last week and doing something to the back then.

    Anyway thats how I am today, not well and not liking it. I can only hang about on here doing nothing and wait until the docs get back to me.

    So you lot had better be having a better day than me or we really are a sorry bunch of people!!

    Andrew
  • FormerMember
    FormerMember
    morning Chrstine

    Andrew
    xx
  • FormerMember
    FormerMember

    hi andrew , im off to bed shortly , but couldnt go until i spoke to you .................im really sorry you are suffering mate .

    im trying to put words and feelings down on here but my flipping brain aint functioning ...........im so tired !!!
    i hope you get some relief from the pain and that you get a quick response from the docter regarding the appropriate drug to take to help you .
    if it helps , send me a p/m and use lots of rude words and get it all out of your system .

    i will catch up with you later .
    have a 'pain relief / pain free day' mate
    big hug
    suexxxxxxxx

  • FormerMember
    FormerMember
    Goodnight sue.
    Hear from you later I hope.
    Luv
    Christine.
  • FormerMember
    FormerMember

    Hi ladies,

    its not your faults my back hurts at all is it?

    so don't worry, the medics will come up with something I am sure.

    Sue, have a good days sleep and Christine no probs - you enjoy your walk, if I lived in the countryside like you (and could move) i would be going for a walk too. Enjoy yourself when you can. - lol

    I order you all to have fun today as much as possible.

    Andrew

    Cheers
  • FormerMember
    FormerMember
    morning everyone,
    havent been about much lately, also got to share computer
    with my son because the lap top is not very well,
    andrew, i'm really sorry you are having such a terrible day,
    hope you get some help from doctor soon, i havent got any
    smileys so will send you big ((((((((HUGS)))))))) instead
    christine, hope you enjoy your walk, or skip!
    everyone who i have forgotten, will catch you all later
    dianne xx
  • FormerMember
    FormerMember
    Thanks Dianne, bet your son doesn't want to share the computer at all does he - lol

    have a good day and I hope hyour laptop gets better soon! and thanks fo the hug.

    Andrew
    xx
  • Andrew, ((((((((((((((((((((((((((((((((hugs))))))))))))))))))))))))))))))))) and hope your back gets something to help today, and very soon.......Amitrypyilline (always forget where there is an i and where a y in that name) might help, it is a muscle relaxant as well as an anti depressant, have they considered a nerve block? Just a thought.....

    Off for that finance appointment soon, spare us a thought or two!!!!!!!!!!

    Moomy

  • FormerMember
    FormerMember
    Hi Helen,

    yes, at least I am not a pharmacist so spelling drugs is a hobby - lol

    I know you are off for that meeting today so best of luck and, if you still want to, let me know what comes of it. I will be here - lol - not much chance of moving far.

    We looked at nerve blockers and such but still feel that there are other possbulities first. the nerev in question governs my leg movements and there os the danger of ending up unable to walk at all if we follow that route so it has been put on the back burner for the time being.

    Bets wishes for the meeting and the est of the day, catch up later.

    Andrew
    xx