Hi Liz and thanks,
My dad a couple of days before he died was very disorientated and he fell. We then had to admit him to a hospice and we did – but we still did not see the Macmillan nurses. They were wonderful at the hospice, I cared for my dad and just being there was just what we all needed as a family. I could not speak highly enough of them.
However, as you, my experience with my mum at the hospital was awfully distressing, her care was less than optimal and I moved in to look after her after she suffered a stroke while having a central venous line inserted for chemotherapy. I am certain the hospital were at fault and then guess what she contracted MRSA and died. Although she had ovarian cancer with secondaries everywhere,the main cause of death on her certificate was MRSA. It was just a nightmare and yet none f my family felt able to take the case further, we agreed that mum had suffered enough and we could not subject her to a post mortem, however, without a doubt her sudden death was attributable to the hospital. It was all so distressing and also so maddening – so the “punch in the hole” would be very familiar!!
I imagine the visit may be both scary and yet reassuring and I think that you taking the photograph of your mum is a great idea – I’m sure they would love to meet your mum when she was not so sick. The thought of going will be quite challenging but I would think that the outcome will be positive – but you’ll need to be strong – especially if you’re going on your own.
Hi Jayne and thanks
I think Chesil beach is about 30 mins away, I live in Hampshire so it is just down the road! My husband is still being cared for by the Marsden, he goes every 3 months and so far so good – but you never know and we can never be complacent. My son is 11 and he has been fantastic, he was very close to my mum and he has missed her very much but he has also shown so much maturity and insight into my loss. He just seems to know when I need that extra hug and he seems to accept that even now I am so easily upset!!
As I said I do not know what I would have done without both I them, we do need people around who will still love us and accept us even when we are mad, unreasonable and really just off the wall!
Yes another week over and back to work tomorrow, how would you say your week has been? I think you are very lucky Jayne to be surrounded by all your mum’s belongings so enjoy everything all around you, I’m sure she’s enjoying watching over you in familiar surroundings. She would be so proud of you.
See you soon,
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