AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    Hi Teresa My Little Chickie,
    I have just p/m you so hope you get it ok.

    My dear Kate,
    sorry you missed the shopping trip but bet you was a bit relived as didn't need to be the donkey carrying all the bags! lol

    I hope she is feeling a little less tired tomorrow but you know what they say sleep is a great healer.

    Hope the duracell bunny is up and running around again soon. Send her my love and big hugs to you both

    love and hugs mother hen mel xx

    My dear Karen,
    hope your bug is going and that you are feeling much better now?

    we are all ok Darryl still doing well and we've had a rest day today as done so much the last few weeks!! so i'm just chilling and drinking lots of tea!!

    you take care sweet and hope to hear from you very soon love n hugs mother hen mel xxx

    Hi Moomy a new little chickie,
    Welcome to my thread and hope you are ok and that you are having a good day so far?

    we are all lovely people on here and support each other as best we can but we also have some funny times and mad times along the way so i hope you enjoy being part of our community! lol

    You are welcome here anytime whether it's just to chat, rant rave or share good or bad times or laughs so don't be shy and keep posting as it's so nice to hear from new people on this thread.

    I hope you find us all kind helpful supportive and funny, love n hugs mother hen mel xx

    My Dear Jules,
    Another new chickie!! Theres plenty of room for more so welcome to my thread.

    I hope you are well and having a good day so far today?

    You will find all of us on here very friendly and supportive, and even a bit mad at times! lol but we all have something in common and thats that we all care about each other.

    If you ever want a chat or rant and rave someone is usually about and if there not at that time we always reply when we log on so please don't ever think you are alone

    I hope you find my thread helpfull and supportive and please post if you want to talk about anything so don't be shy

    take care love n hugs mother hen mel xxx
  • Mel, thank you for that, I'm only new to your brilliant site, have been on 24/7 for a while, find the humour helps! It was funny being called a new little chickie! (my profile will tell you why!), haha! I will pop in at times to see you all, and hope you keep well.

    Teresa, if you want to chat about Lymphoma, if that is what the powers that be decide your brave young lady has, I'm only too happy to tell you all i know if it will help....love and hugs to you, it's tough!

    Thank you, mother hen Mel, that was so sweet of you!

    Moomy

  • FormerMember
    FormerMember
    Hey folks

    Teresa babe I have thought about you and surrogate neice Michaela all day, got everything crossed babe, please dont worry about anything unimportant ie what you have or havent said ok?i honestly I dont notice anythin anyway ha ha, thinking of you all and cant wait for Thurs/Fri, when we know what we are up against, and i mean WE, always here for you and Michaela, promise that, tonnes and tonnes of love Kate xxxxxxxxxxxxxxxxxxxxxxxxxx

    Mother Hen Melly-moo, cant tell you how lovely it is to see your posts, make me go arrrghhhh, mama hen Mels back, hope you are feeling better, wont nag you about the docs, not that you would listen anyway ! ha ha, seems your getting it from all angles, just want you to know that you are loved and missed, always here for you, get well soon matey,tonnes and tonnes of love Kate xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    Karen chick/hen, I hope you are ok today, that the bug has gone and also you seem very low babe, thats understandable, you are doing so well,so strong and im soo proud of you, always here for you too babe, keep smileing, keep that strength, so happy one of my nephews has great taste ha ha , tonnes and tonnes of love Kate xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    Moomy matey nice to meet you on the gorgeous Mellymoos thread, aka our mother-hen, please stick around, we are a lovely careing bunch, glad your beautiful talented daughter is doing well, ( see how nosey I am ha ha ) hope our Teresa chicky mate doesnt need your expertise, if you get my drift, but its sure good to know you are there, helping and careing, welcome moomy /Helen loads of love Kate xxxxxxxxxxxxxxxxxxxxxxxxxx

    Juls, Muriel and everyone else, hope you have had a good day today, and that tomorrow is better, hurrah Gorgeous Mellymoos back, who started the best thread on mac !!! Keep posting they are all wonderful on this thread, they cant get rid of me ha ha xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

    Well girls heres my news, Duracell bunny very tired today but ok in general, feeding machine been connected all day, consultants appointment on Monday, Chemo No 3 on Tuesday boo hoo, my brother rang an hour ago to apologise for not visiting, ( he lives 250 miles away) also dropped the bombshell that they have found a tumor in his head, im kinda numb, almost denying the conversation took place, got that head of mine in the sand again, just like with the screening

    Love, love love you all
    Kate xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember
    My Dear Kate,

    here you go again with your head and the sand!!! gonna take all the sand away from you! haahaha I hope all works out with your brother and it may be a benign tumour on his brain that he has, you never know. I don't know if you remembering me saying before that i had a brain op well if you want any advice then just ask ok?

    I'm so pleased the duracell bunny been resting well and that she has had an ok day. Lets hope this continues for her.

    I hope her chemo on tuesday goes well, please let me know how she gets on ok? will be thinking of you both.

    I know it's after chemo has finished that you always worry more but do try to be prepared and keep away from any sand! lol how many more courses does she have to have? Darryl had 6 courses altogether.

    let me know how everything goes and how your brother gets on also. Will be thinking of you love big (((((((((hugs)))))))) mother hen mel xxx
  • FormerMember
    FormerMember
    hi Moomy,
    thank you for your reply to my post. I read your profile and can now understand how you feel being called a little chickie, but with your permission i will continue to call you it as everyone on here are my little chickies! hahaha

    I'm so sorry that your daughter has been so ill, but you sound a strong supportive mum so she must take after you! I'm pleased that Teresa will have someone to talk to if it turns out that her poor Michaela has the same illness, which i am hoping and praying that she hasn't. But i'm sure you're with me when i say we are all joined in a group hug around Teresa and Michaela to wish them well and good luck!

    I'm hoping you and your daughter are having a pleasent evening and that all is going well for you both at the moment?

    As i say to all my little chickies i'm here for you if you ever want a chat or just rant and rave. You take care love and hugs mother hen mel xxxxxxxx
  • Dear Mother Hen Mel, thank you for that sweet greeting, it' makes me grin to think I've a mother hen looking out for me, it's great! Yes, I also send an enormous hug to Teresa and Michaela and so hope that I don't need to give her any help at all! My girl has and is still going through so much....love to you too, I feel really cared for.....

    Moomy

  • FormerMember
    FormerMember
    My Dear Little Chickie Moomy,

    I'm so pleased you feel cared for as thats my intention with everyone on this thread!

    We all need to feel like someone is looking out for us no matter what age we are!! so you lean on me as much as you want thats no problem at all! lol

    I feel i must warn you though that we do get a bit mad on here sometimes, especially when things are going well for us all, but i have no control over that! hahaha My little chickies can get a bit out of hand sometimes, but to be honest i think i start my fair share of madness too!! lol

    You and your daughter are in my thoughts and i hope we can help you as you take this journey with your daughter. She can lean on you and you can lean on us all for strenghth. I also truly hope Teresa won't need advice and guidence from you about lymphoma but i take comfort myself knowing that someone else will be looking after her too. I'd like to thank you for that on Teresa's behalf as i'm sure it's a comfort to her too. I'm hoping she is resting well in bed at the moment as bless her she has been through so much she must be exhausted now. You just wish you could do more don't you?

    take care love and hugs mother hen mel xxxxx

  • Mother Hen Mel, I'm sure I don't need to be warned about being a little mad, maybe you haven't seen or heard about my dippy times on 24/7???? I even ran a short rehearsal of a cyber choir!!!! I'm pleased to hear that you think Teresa is resting, when are Michaela's results due?

    Moomy

  • FormerMember
    FormerMember
    Hi Chickie Moomy,

    Choirs eh? well we haven't had one of those on here yet so maybe when everyone feels better thats something you could start to cheer everyone up! lol
    Michaela, Teresa'a daughter gets her results on thurs/fri. So we are keeping our fingers crossed for them. Michaela is only 17 and Teresa's only baby i'm sure she won't mind me telling you that. It's such a shame there is a need for forums like this, but i must admit without it i probably would have really gone mad by now!!

    My husband Darryl was diagnosed in sept 2007, but i didn't find this site until jan so up until then had tried to cope on our own. But since iv'e been on here and chatted to other people it has made such a difference!

    Not sure if you have read my profile, or my novel should i say! lol but it explains all about Darryl's illness on there?

    take care my little chicky love and hugs mother hen mel xxxx
  • Yes, Mother Hen Mel, I have read your profile, and am honoured to be tucked under your wing, this site has such amazing people! I am going to sign off very soon and get some shut-eye. Love and hugs.....

    Moomy