AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    Hi MY likkle Chicken Karen,

    Well what alot i missed last night! when i logged on i had 120 emails all from mac so it's took me a while to catch up! lol

    I would have been on last night but Darryl hogged the laptop looking at stereo equipment, and i fell asleep waiting for him to end!!! flipping men pain in the butt or what!

    I did ring the onco dr taylor's sec again and now she's told me that he's on holiday for two weeks from next week!! plus he wants to see darryl before he starts radiotherapy with him so probably won't be untill about the 14th april! As you can imagine i did hollar and shout and moan but didn't get me anywhere! She said she would get one of the radiotherapy nurses to ring me but not heard from them either so bit peed off at the mo! never mind hopefully get sorted soon

    Well it sounds like you all had a party without me last night and sorry i missed all that, but it was nice to hear all my likkle chickens having fun!! Makes me feel loads better knowing you are all ok.

    I hope you have had a good day today and hope to hear from you very soon.
    I'm glad you have all been good(well sort of) and where is my drinks?
    I'm a boring brunette i'm afraid but was thinking of having highlights but not sure yet?

    Well my likkle chicken got to catch up with my other likkle chickens too now but hope to hear from you very soon.
    Take care and sod the long goodbyes now cos iv'e forgotten half of them (must be my age) lol. Might keep the firemen though with extra long hoses hahaha love and hugs mother hen mel xxxx
  • FormerMember
    FormerMember
    My Dear Likkle Chicken Teresa,

    How are you this evening? How is little Michaela doing, have you found out anymore what may be wrong with her? Such a shame she's in hospital for easter, bet she gets spoilt though, well maybe just a little bit! haha. I truely hope she is a little better today and you are closer to knowing whats wrong with her as i know you're very worried about her.

    Well what a lot i missed last night! turned my computer on and had 120 emails all from mac, so took me a while to catch up i'm afraid!!! lol probably forget half of it too cos i'm an old mother hen and getting forgetfull! hahaha
    Whats all this bout singing Dionne Warwick? I'm more a heavy rock fan myself but must also admit to being a mad pink fan!!! sad yes i know but i just love her songs. I like Tori amos too though so thats a bit lighter! haha Born to raise hell i was! hahaha

    I'm so sorry i wasn't about last night only daz was busy on the laptop looking at stereo stuff and i fell asleep with boredom! bless him but flippin hogger is all i can say!! I wouldn't mind but he bought the laptop for me for xmas and the whole family use it more than me half the time!! hahaha still share and share alike i suppose.

    Anyway chicken best check on my other chickens as well. Hope you had a better day today?

    Oh poo nearly forgot rang the onco dr Taylors sec again and she said he is on holiday for two weeks next week and will have to see Darryl before he starts radiotherapy so that probably won't be until about the 14th april!!! I shouted and hollered but didn't get me anywhere except she said she would get one of the radiotherapy nurses to ring me but they haven't bothered so far. I hate all this as we were going away on the 10th may to see some friends for a week so that may have to be delayedd now and Darryl's gutted as he said he could do with a holiday. Oh well just another hurdle to get over but sure you'll all give us a leg up! haha

    well i am going now but hope to hear from you very soon. I'm not saying the long goodbye as forgot half of it but will keep the firemen with very long hoses and forget the pinnies iv'e gone off them!!! haha love and hugs mother hen mel xxx
  • FormerMember
    FormerMember
    Hello Kate my Likkle Looney Chick!

    Well what can i say? i hope your straight jacket has been loosened so at least you can type to us? Wasn't that nice of Karen to iron it for you! lol Mind i mite send mine over to her to do(not straight jacket just ironing) as don't have an ironing board at mo as i put it outside while i cleaned the kitchen floor and Darryl was going to the dump that day so thought it was rubbish so took it to the dump!! Now no laughing cos thats not allowed cos it was a good board as was hugh and had it for 20 years, so now don't iron anything just have to hang everything instead! haha

    How is our little duracell bunny today? Hope she is all recharged and rareing to go? Hows you and your dad also?
    Hope you have had a good day and that your mum has been comfy and well?

    I was going to come on last night but Darryl was busy looking at stereo stuff on the net and i got bored of waiting and fell asleep i'm afraid so sorry about that!
    seems i missed a good eve and glad all my little chickens still helping each other even when i'm not around. You truely are likkle stars!!!

    wheres my drink and whats this all about vera lynne and dionne warwick? i'm more a heavy rock fan myself cos i was born to raise hell!!! haha but will admit to likeing Pink cos i think her songs are cool and i'm mad about her, think thats cos she reminds me of myself when i was her age!! haha plus i do like Tori Amos too and thats alot lighter.

    I rang Dr Taylors sec back up and she said he's on holiday for two weeks next week so probably won't be seeing Darryl untill the 14th april! I hollered and ranted and raved but it never got me anywhere she just said she would get one of the radiotherapy nurses to ring me for a chat but they haven't yet.

    when I turned my laptop on today i had 120 emails all from mac so it's took me a while to catch up!!! thought there had been a mistake at first but no, there you all where partying without me! lol Glad you are all so supportive to each other and had fun even though mother hen not around!

    Anyway iv'e given up on the long goodbyes as me an old mother hen and getting a bit forgetful but i will keep the firemen with big hoses but gone off the pinnies now!!! love and hugs mother hen mel xxxx
  • FormerMember
    FormerMember
    Hi Kiera my little chicken,

    I'm so sorry i missed you last night nut would like to welcome you to our thread.

    I'm sorry i wasn't about as my hubby Darryl was on the net looking at stereo stuff and i fell asleep waiting! very bad mother hen i am, not being here for my little chickens! lol

    I'm glad chickens Kate, karen, and Teresa where here for you though and so sorry you felt so alone.

    When i turned my laptop on today i had 120 emails all from mac so it's taken me a while to read them all so sorry for the delay in replying.

    I read your profile(hope you didn't mind) and was surprised at how young you are and with the type of cancer you have babe. You sound a very strong lady and seem like you are doing really well! You're a credit to yourself and should be proud that you have done so well! Whats next treatment wise for you? Darryl has just finished 6 courses of chemo and his tumour has shrunk by 90% he also has mets in his spine but when we saw his onco 2 weeks ago he said they had also been affected by the chemo and had changed shape and just looked like scar tissue now! so good news all round really. Darryl has been told the type of lung cancer he has got is small cell lung cancer and that it is terminal with a 2-3 year life span. Darryl is 44 years old and determined to reach his 50th birthday which i truely believe he will, especially how well he has responded to chemo. At the moment i have invited so many people to his 50th think i will have to hire wembley stadium to fit everyone in!!! hahaah

    I hope you have had a good day today and i hope to hear from you very soon as you are very welcome, and as you saw from last night we do have some laughs and funny times evn though it does get a bit mad sometimes!!

    You are now officially one of my likkle chickens and if mother hen can help you in anyway then please don't hesitate to ask cos thats what i'm here for!

    well i hope to hear from you very soon don't forget you are never alone now. Love and (((((((((((hugs)))))))))) mother hen mel xxxxxx

  • FormerMember
    FormerMember
    dear little chicken Kiera,
    I'm so sorry i seem to have got your profile mixed up with someone elses! See i'm getting old and now i'm an old mother hen! lol I hope you accept my sincere apologies and that you forgive me. I didn't realise you was a carer and not a sufferer of cancer so i'm very sorry if i offended you. Thats not a very good start is it? I hope you can forgive me but continue to keep posting to me. I truely am so very sorry for the mix up. Hope to hear from you very soon love hugs mother hen mel xxxx
  • FormerMember
    FormerMember
    Hey There Mother Hen
    You feeling all refreshed? you little rock chick ! Turn Darryls stereo up full blast, I like most music, not too sure bout Vera Lynn shes on too many drugs ha ha Music collection is sooo varied ive got somethin for all tastes, but music i would take on a desert island would be U2 love love love em , Bono not the greatest looker, maybe he could sing to me and id close my eyes oh and cover him with your pillow ha ha

    Well bet it has taken ages to read all our post last night, back on Postman Pat ha ha, You could always iron the clothes whilst on the kids? just a thought.... How dare the onco go on holiday, jump a flight track em down, holler over the pool, hijack the tour bus, seriously you must be disheartend we will all make the time fly, but thats upsettin, speakin of time flyin 120 e-mails boy can we waffle, it was a mad night ,neighbours dropping by to borrow sugar ha ha, Karens not bad on the ironing, bit too much star ch though....

    Wonder where Teresa chick is, hope she is logged on by the time ive typed this essay, as we are worried about Michaela and her too,( i always have so much to say, too much ha ha, on and on like ariston) maybe shes asleep, poor thing has to be worn out, Think chikky Karens tired from all the ironing, poor thing has a bug oooh and we got 3 more gorgeous surrogate nephews, jees Christmas is gonna be expensive

    Now news this end, Mum has had the anti sickness driver put on max, so she is so drowsy, not been well at all, upset tummy and I was changein the bed at 5.30 this morn, hollered for a commode and she wasnt happy when i put it by her bed, She is soo proud, had to make a joke of it all, to ease her upset, covered it in fancy cushions, made all sorts of daft wisecracks about campin etc, even made a gold crown out of card for the queens throne, made her laugh a lot but inside I was crying.

    Anyway I am up now and desperatly trying to stay awake so I can put another carton of ensure down her peg in a bit oh and more immodium, she is loseing so much weight

    Anyway girlies big hoses blah blah sorry i am bushed
    Love you all K xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember
    My dear little chicken Hayley,

    I'm so sorry i wasn't about last night to greet you so i would like to take the time to welcome you now!

    I'm sorry i wasn't about only my hubby Darryl was looking at stereo stuff on the internet and i fell asleep waiting for him to finish!! You know what these boys and their toys are like! lol

    I'm glad my other little chickens kept you company and that they was a support to you. Seems like half of you are from essex, me i'm from kent so not so far away either! Maybe we should all arrange to meet up one day when everyone is well enough or there loved ones are?

    I read your profile i hope you didn't mind and was surprised at how young you was for the type of cancer you have!! But you sound like you are doing really well and even surprising the drs! You're a credit to yourself and should be proud at how well you have done! It's a pleasure to know you and i hope that you continue to post on this thread as we all support each other and there is no bitchyness even though it does get a bit mad sometimes!! lol

    When i turned my laptop on today i had 120 emails all from mac so it has taken me a while to read them all!!

    If you read my profile it tells you all about my hubands Darryls cancer so i won't bore you with all the details here! mind i do warn you it's more a novel, funny how once you get typing you never seem to stop isn't it?

    To update on Darryl though he has now finished 6 courses of chemo and his tumour has gome down my 90%, also the mets in his spine the onco told us have also been affected by the chemo and have changed shape and just look like scar tissue now!! so good news so far. We are just waiting for radiotherapy to start but that won't be until after the 14th April.
    Darryl is 44 years old and been given a 2-3 year life span but he's datermined to make his 50th birthday, of which you are welcome too!! mind at this rate i'm gonna have to hire wembley stadium as got so many people invited!! will be a good laugh though as i truely believe Darryl will make it

    Well you are now officially one of my likkle chickens so if you ever need me just shout and if i'm not about one of the other chickens usually are as you found out last night.

    This is a happy caring thread with no bitchyness at all just support and kindness so welcome and i hope we all help you even if we do get a bit mad some times!! Dionne Warwick and Vera Lynn!!! what the hell i'm a heavy rock fan myself born to raise hell!!! But must admit to also liking Pink cos she reminds me of me when i was young and i think shes good singer, and also partial to Tori Amos to be on the lighter side. Think my chickens on here had their old heads on but the're lovely really!! haha

    Anyway babe bye for now you take care hope you had a good day today. Hope to hear from you very soon love and hugs mother hen mel xxxxx
  • FormerMember
    FormerMember
    Hi My Little Chicken Kate,
    so nice to hear from you, but sorry the duracell bunny not so good. You made me laugh about the cusions and crown bless her, it must be awful for her to rely on you so much and we all worry about loosing our dignity don't we? ( i hope you don't think i was being nasty as that sounded a bit wrong?) But you sound like you are making it as dignified as you can. I hope she is feeling a little better tom and my thoughts and parayers are with you both. Mind if she's the duracell bunny i know and love shell be back well before you know it. No stopping the duracell bunny is there?

    I know you worry sweet as i do with Darryl, but we do our best and be there when they need us and that in turn helps them loads, just knowing we are there supporting and helping them as much as we can.

    How on earth can you like U2? Mind if the pillow is about i suppose i can forgive you!!!! hahaah Sorry me being a bossy mother hen!! I'll have to convert you away from them and onto Motorhead me thinks!!!!

    I was bit annoyed at Dr Taylor going away for two weeks to as they never told me that at the beggining of the week. I reckon he's running away from me, i bet he told his secretary to say he was going away cos he'd heard about me! lol
    Oh well at least i can laugh about it i suppose, well sort of anyway!

    I expect poor Teresa chick is tired too bless her. She's been through so much but remains so strong i'm proud to have her as a baby chicken!! Puts some people to shame how well she is doing ( i don't mean any of us either). I hope Michaela is ok and that she's getting better cos your heart goes out to them doesn't it?

    Well as for Karen doing the ironing with too much starch, i'll tell her to leave the starch out on mine cos look a bit funny walking down the road all straight legged!! bit like the wooden tops( not sure if you remember them as you may be too young! lol)

    I hope you get a good kip tonight and that your mum has a comfy night all tucked up in her big bed. Hope to hear from you soon chickky love and hugs mother hen mel xxx
  • FormerMember
    FormerMember

    Hey mother hen

    Not sure if you are still around? But ive just been helpin my queen mum on her throne ha ha, Thankyou for your kind words, now me thinks we should make a pact ok? no offence is ever taken never ever thinkin you bein nasty, bossy etc etc what im trying to say is that we are friends now and we are friends cos we get each other, so stop explainin, you would never offend me

    Now Motorhead ooer they are a little too hardcore for me but each to their own!
    Know what you mean about Teresa and Michaela worrying isnt it, we have really all bonded, still no news is good news they say, Hope the chicks are haveing sweet dreams probably about firemen with long hoses ha ha
    Well another 15 mins and im off to bed too, I too hope the duracell bunny has a better day tomorrow and you Darryl Daley Kirsty have a good easter but sure we will chat over the weekend
    Love you to bits Motherhen you are a star
    K xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx

  • FormerMember
    FormerMember
    Ps I remember the four tops ha ha xxxxxxxxx