AM I THE ONLY CARER WHO NEVER SLEEPS!!!!!

FormerMember
FormerMember
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Well here i am again at 4.30 in the morning and i can't sleep yet again!! My husband Darryl has terminal small cell cancer and, at the moment is going through a really good phase. Which, i would have thought, would set my mind at rest and enable me to sleep. But no, here i am again having had 2 hrs sleep tonight wide awake with mad thoughts running around my head!! This is driving me crazy and i just seem to be on auto pilot all the time. Darryl is 44 years old and we have been given a prognosis of a 2-3 year life span for him. I can't seem to let go of this thought, and maybe part of me can't sleep because of that, as i feel if i'm asleep i'm wasteing precious time!! Darryl is sound asleep and resting well, and if i stay upstairs next to him listening to his breathing, i keep thinking is this the last time i'll ever hear that and end up getting so uptight and worried that i find it better to just get up again. So i wander round the house do a few chores, have a hot caffiene free drink and will myself to sleep all to no avail i might add!! hahaha surely i'm not the only carer who never sleeps, or am i????? any comments gratefully recieved. Take care my friends and hope your all sleeping well. love and hugs mel xxx
  • FormerMember
    FormerMember
    my little chicken Teresa,
    Sorry haven't posted for a couple of days but had a few probs here, nothing to do with darryl, so please don't worry it's me really but won't go into it as it's not for the world to know. hahaha if you know what i mean? hope you managed to get to the crem with your mum to tell your dad bout baby Sam my little surrogate nephew.I hope baby sam has settled at home now and that Angie and James are managing to get some sleep? bet Mia's very happy with her baby brother? I'm so pleased Michaela is having a fab time in Germany and good for her going in the lift, talk about conquering your fears the hard way! bless her. Bet you have missed each other though? just realised she was due home today what a wombat i am!!! has she seen little Sam yet? I hope she has a nice time with her dad looking round the uni. Can you believe your little girl is all grown up now??? goes so quick doesn't it, one minute you're pushing them in a pram next the're leaving for uni or home! I miss all the years with Daley and Kirsty when they were young. We used to do really mad stuff like going to the beach at 11pm, or i'd make up assault courses for them, or lay down rolls of wallpaper and we'd get different coloured paints in paint trays then run all over the paper, or make musical instruments with kitchen stuff. plus loads of other stuff, too much to mention. But we had fun and i miss all that as they don't wanna do it all now, not sure why? ahahha.
    Darryl continues to do well, but we still haven't heard about when his radiotherapy starts so def ringing the secretary on monday to find out what is going on. The decorating in the bathroom and stairs and hall are all finished and had a new stair carpet fitted yesterday it looks really nice and i'm very pleased how it has all turned out. I'm going to do the lounge next, was gonna do our bedroom but it's got quite a lot that needs doing in ther so changed my mind! haha looking at paint and wallpaper tom with darryl.
    Well i had best go as rambling as usual you take care babe hope to hear from you very soon love hugs and easter eggs mother hen mel xxxxx
  • FormerMember
    FormerMember
    hi chicky kate

    i hope i only have to write this post once tonight and dont cancel it instead lol.

    kate dont you dare ever feel guilty about talking about your mum, you could never p me off, i have been where you are now caring for our wonderful mums, and the worry etc., your'e doing a marvellous job and it helps to be able to speak to others who know what your going through. i miss my mum every second of every day but it doesnt stop me wanting to hear how your mum is getting on, so please dont ever feel guilty ok???? (sorry for sounding bossy) lol.
    the brood were all fed for another little while anyway, where do they put it all lol.
    i really hope your mum doesnt have any side effects from pump being removed i'm keeping my fingers crossed. please keep us informed of how she is doing bless her.

    hope you have a good weekend, speak soon
    lots of love and hugs, oh and huge easter eggs
    love nurse gladys chick karen xxx
  • FormerMember
    FormerMember
    hi mama hen mel

    good to see you, was getting worried about u? hope everything ok
    love and hugs chicky karen xxx
  • FormerMember
    FormerMember
    Hi my little chicken Karen,
    sorry i haven't posted for a couple of days but had a few worries here, nothing to do with darryl so please don't worry, more bout me but not really for the world to know if you know what i mean! hahaha.
    talking bout Danny my nephew who's 18 now had speech and language difficulties as well as hearing problems at school. He didn't do well at regular school as kids kept picking on him so he went to a school especially for kids with the same problems as him and he did really well. He even did some g.c.s.e's and got b's c's and d's! we were all so proud of him and he is on a training course now in archetecture ( bad spelling sorry), SO i'm sure your Danny will do just as well bless his little heart, he sounds such a sweetie just want to hug him! hhaha. It's surprising how well kids can do with difficulties they have to face every day, and the new school (we used to say big school too) he's going to sounds fab so good luck with that i'm sure he'll be very happy there.
    we have had the new stair carpet laid yesterday and it has finished the stairs and hall off nicely. I'm like a door woman now making sure people take ther shoes off before they come in! lol especially as Daley has a constant supply of mates coming round in the evening!
    We have decided to do the living room next as our bedroom is going to be a bigger task as it's a bigger room!! going to look for paint and wallpaper tom so should be fun as Darryl and i can never agree on colours so i just pick what i want and go to the till!! then when the decs done Darryl always says you made the right choice there mel it looks really nice! flipping men if they listened to us in the first place save all that arguing in the diy shops! hahaha.
    Darryl continues to do well but we still haven't heard when his radiotherapy is starting so def ringing the onco's sec on mon morning. Glad you had fun at tesco!! haha sorry that was a bit sarcastic but not meant to offend. And did you manage to feed your hungry broood? I know how you feel in that respect, mine are always hungry too, infact, darryl put on a stone in weight during chemo! Think that was all the chocolate he had cravings for haha
    Anyway my little chicken i hope you have a good nites sleep tonight and hope to hear from you very soon take care love hugs and easter eggs your mother hen mel xxx
  • FormerMember
    FormerMember
    Hi my little chicken Kate,
    sorry haven't posted for a couple of days i haven't forgotten my little chicks just had a few probs,not with Darryl so please don't worry, just with myself but don't really want to tell the world if you know what i mean! haha hope you're not offended by that.
    Hows your mum doing today? i expect you will worry a bit now her chemo is finished babe, but like i said i know it sounds awful but be prepared for her to go back into hospital then if she doesn't then it's a bonus. sort of reverse psychology really. I'm sure she will be well looked after by you though as you are a great carer.And you're doing a great job so keep up the good work!
    Darryl continues to do well we are going to decorate the front room next as it's smaller then our bedroom and not as much to do! darryl and i are going to look for paint and paper tomorrow, so looking forward to that! haha darryl and i always end up disagreeing in the diy shops but i just choose what i want then go to the till! haha mind you when it's done darryl always says i made the right choice and that it looks lovely! men eh? hahaha they should know by now us women know best and that they never win over things like that, but it's fun listening to them try! lol (sorry any men i have offended there but you knoww i'm right! haha)
    We still haven't heard about darryls radiotherapy so i am definately ringing the onco's secretary on monday to find out whats going on. Well babe i hope you have a peaceful night with your mum and hope you don't get too tiddly tonight as don't want another headache do you? hah you take care hope to hear from you very soon love hugs and easter eggs your mother hen mel xx
  • FormerMember
    FormerMember
    hey mel

    so good to see you, hope your feeling bit better, was getting quite worried about you!!

    glad darryl is still feeling ok, hope you get some news on monday.

    thanks for telling me about your nephew that is so good and encouraging to hear, he has done very well hasnt he?

    tesco, well what a bloody nightmare, every saturday i say i'm not shopping again at the weekend, and yes i still end up doing it lol

    your carpet sounds really nice, its lovely having new things done isnt it? hope kirsty and daley are taking there shoes off, you will have to camp out in the hall and make sure lol

    hope you have fun at the diy tomorrow lol me and will end up arguing about what we should get, but like you i always get my own way ha ha lol


    hope you have a good evening and good day tomorrow, lots of love and easter eggs, chick karen xxx

  • FormerMember
    FormerMember
    Hey Mellymoo
    Hope you are ok, understand you dont want to go public, but sure I speak for all your chicks when I say we think the world of you?,You are the mother hen - anything we can do ? we will be there right away ok ? You are the backbone on here and this is the thread you started, truly hope you are ok ? xxxxxxxxxxxx Let us know whats said on Monday Re Darryl,- we will all worry xxxxxxxxxxxxxxxxxxxxxxxx and if we can do anything for you ?
    Karen- Thanks babe that was a lovely post, you can boss me all you want, think you get what i was trying to say, thanks for your generosity babe, would hate to ever add to your pain, if you get my drift xxxxxxxxxxxxxxxxx
    Teresa, where are you sister chick? worn out with the new addition? shame hes not as chubby as I imagine, I love big chubby boys ha ha
    Oooher just realised little chick Miichaela is back? Hope she brought mama chick a present and it wasnt a frankfurter ha ha
    God im bad arent I? hope you all get me
    Loads and Loads of love Katexxxxxxxxxxxxxx keep you updated on Mum The Duracell Bunny xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember
    hey kate

    good to see you again hun, its bossy gladys here lol i know what you were saying sweet and it was very thoughtful of you bless ya.

    i def agree with you regarding mel, yes we all do think the world of her dont we?

    i have been laughing about the frankfurter lol haha naughty girl, youv'e started me off now, ann summers springs to mind lol

    anyway hunni hope you have a good day tomorrow
    love and hugs, chicky karen xxx
  • FormerMember
    FormerMember
    Hey fellow chicky pie Karen
    i am creased up, so you are bad too ha ha,
    just a short message cos my sides are acheing
    Love ya chick
    Kate xxxxxxxxxxxxxxxx
  • FormerMember
    FormerMember
    hey naughty chick kate lol

    i am still laughing about you saying frankfurter lol

    anyway mate speak very soon, will go and try to get some sleep, hope you sleep well too
    love ya, chicky karen xx