We Talk Brain Tumours

Debs. With you in spirit tomorrow. Positive thoughts.

cx

Debs

As others have said, hope tomorrow goes smoothly. I can't imagine how you are feeling at the moment - god willing your veins will behave themselves for once!

Thinking of you.

Naomi.xx

Tasha,

I love your positive attitude - it'll keep you going in the months ahead so hang on to it. Sometimes the tumours grow then settle for a while so hopefully your dad will enjoy a slight reprieve. Love how he is planning a walk and a holiday - good on him.

South Africa is just a plane ride away - there is always Skype etc and think of the holidays. She'll be a walking alongside you in spirit, if not in body.

Lots of love,

Naomi.xx

Hi Naomi, Thank you for your wise words (yet again)!

Don't get me wrong, I've still had a couple of crying fits today, but this eve he is still with us, and it's thoughts like that that do and will keep me going. I'm trying to make the time left being as positive as i can possibly be, if that makes sense? I know the dark days will soon be here, so I just have to grasp these ones now. Tomorrow I'll probably be on here moaning, but that's just the way this journey goes and I'm glad I can come here and be up one minute and down the next!

Tasha x

huge positive hugs debs xxxxxxxxxxxx

Dear Dawn sending you my condolences for your loss huge hugs to you Julie xx

Oh I felt like a superstar signing in today and seeing my name all over the screen.  Thank you friends, much appreciated.

Well I have been telling myself it's just another MRI but you can't fool and old fool of a 44yo body!  It woke me at 5.39am with toothache, headache, stomach ache, ears popping and 'a few too many visits to the loo'.  I tried and I failed!  However, I refused to get up until 7am and almost through my first cuppa tea of the day and the headache has gone, toothache subsiding but stomach still doing somersaults (if only the body could still do them, I was a school gymnast & trampolinist!).

Hubby has gone karate training and is staying to help build some cupboards, he won't be home till between 12 and 1pm - I think that's his way of staying out of the firing line lol  Kids and Dexter (oldest dog) are still in bed, only Ollie my faithful companion came downstairs & curled up on the sofa to be near me. 

Thank you again, I told Lara I had a scan today at about 9pm last night cos in her words "Mum you are in a bad mood, why?" told her and she says "oh right" and goes back to her bedroom, Sean doesn't know cos I hardly saw him after he got in from school, except to eat and Jack knew but doesn't say anything anyway - kids eh LOL

Well, I still have facebook & twitter to trawl yet so I better set off.  Will let you know how the veins behave later.

Love & Strength to all who want or need it xxx

Hey superstar - sending positive vibes for well behaved veins and more so that buttercup remains asleep.  Hope it goes well xx

tasha, Sorry to hear about the scan.  Strangely Pauls first scan showed no change but becasue of his deteriorating symptoms it was decided to change his chemo to PCV, everyone warned us it was a difficult chemo but he didnt really have any issues with it - do follow the dietary restrictions though.  After 6 months the scan showed progression and the oncologist gave him the option to stop all treatment but Pauls requested to continue, which he did on a reduced dose, his scan 6 days before he died showed no change.  I guess i am trying to say its a s*** disease and just take everyday as you can

Love to all - still havent heard from Martyn xxx

Joanna

Sending lots of good vibes for today Debs - hope you get a great result and that B is still in hibernation.  You are amazing :)

MrSG had an MRI last week and sadly for us the news was not great.  He had a huge 20 minute seizure on Thursday so the results were no great surprise, however I did still feel a sense of shock.  His tumour has grown to around 8 cms and has taken over the whole left side, the Onc said he is amazed at just how well he's managing to function and that he's still with us.  That's my hubby all over, stubborn to the end!! - HE will decide when his time has come, not the parasite growing inside his head.  I'm so proud of him.

I was very upset yesterday but am feeling a little better today.  It's our little boys 3rd birthday today, so I'm in fully 'mummy' mode today, playbarn party this afternoon and about to go and visit Daddy to open pressies.

Sending lots of hugs to everybody, I don't post as much but I do read all the updates via my iphone, just wish there was a way of being able to post from that.  Does anybody know if there is??

xxxxx