We Talk Brain Tumours

Dawn, So sorry to hear about Nathan. My heart goes out to you. xx

Debs, Hope all goes well on Saturday and that they don't keep you waiting for the results. x

Love and thoughts with everyone.

Ange xx

Debs,

Thank you for writing all that down for me. Oh I love to read that other people's families are as dysfunctional as my own and how sad that behaviour is repeated generation after generation.

I live in Colchester and Frinton is where I escape to when I miss dad the most as we shared many happy moments on the beach.

Small world!

Thinking of you for Saturday Debs.

With love

Naomi.xx

Dawn,

I am so sorry to read of Nathan's passing. There can be nothing more heartbreaking in the world than to lose one's child.

May Nathan sleep in eternal peace.

Naomi.xx

Thank you for your kind comments. We have to go to the undertakers this afternoon, and really am not looking forward to that..... Nathan's friends came round last night, and "chilled" in his room.....ate pizza and drank a few beers.... Leaving the mess for me to clean up!....And how I loved doing it.....They left about 2am this morning....He had a wonderful circle of friends, and they know my door is always open to them x 

Dawn, I am so sorry to hear of Nathan, I cannot begin to understand how this feel and just send you love and strength for the coming days, Sharron xxx

Dawn, so sorry t hear your awful news, its amazing how they do seem to plan when to let go and he waited till he was ready.  He is no longer suffering

My thoughts and prayers are with you

Joanna xxxxx

Naomi,

I was with Paul for a long time, married 28 years (was a child bride).  We have one son who is away at university in USA.  Does it get lonely? - Yes of course, but its important to make the effort,  friends call and its up to me to make the effort to go out when invited, call around to see people i havent seen for a long time etc.  I speak to my son via skype and email most days but he is not his responsible for me, I hope i never put that burdon on him.  My sister left home when i was 15 and travelled extensively, after i married I lived nearby and I found it my responsiblilty to "entertain" mum and dad and dad alone after my mum died.  I loved them both dearly but sometime found it difficult and often had to rearrange my own plans to suit them.  Dad gave up and gave me power of attorney just weeks after mum died, there was nothing wrong with him his just couldnt be bothered and i ended up taking full responsibility for him, it was difficult.

I guess what i am saying is people will try to make you feel guilty and family seem to be incredibly good at this, but each of should take control of the bits of our life that we can control and we must do what is best for ourselves.  You will only feel guilty if you allow yourself to feel that way.  As for not knowing where to turn when you needed to rant - thats not true, you knew exactly where to come and its good that you did, hopefully so many of us have difficult families will help you x

Debs - still sending those positive vibes

I know I have no excuse for my poor memory but I do recall someone was awaiting scan results yesterday - apologies I cant remember who and of course cant scroll back to find out - hope it went well x

Has anyone heard from Martyn?  Martyn if you are reading sending you a special hug xx

Love to everyone

Joanna xx

dawn...thinking of you and your family...

love and peace

jackie xx

Dawn, so desperately sorry, love and strength to you and your family x

Joanna (JMS) thank you for thinking of us-it was my dad getting his results yesterday. Not good news unfortunetly, treatment hasn't worked and it's continuing to grow. The usual oncologist had said that if signs of growth were there, she wouldn't offer any further treatment. Luckily, mum and dad saw a different oncologist and so a new treatment plan is being started-PCV. They're going to try and get away somewhere warm before it starts, which will be lovely.

I know pallative care was talked about too yesterday, but will wait to speak to my mum alone before I broach the things I would like to know . 

My dad is at the moment fairly well. I would say very well, but we know that's not true. Since finishing chemo on Sun, his headaches have stopped and he's regained mobility on his left side. It may all be different by tomorrow, so lets celebrate that today. Think he may even be planning one of his walks tomorrow!!!

On a completely selfish note, the news about my dads tumour came on top of the news that my best friend now has a moving date- she's off to South Africa in March! I'm so happy for her and the family, but selfishly sad for me-the prospect of loosing my dad and the ability to lean on my best friend, is not one I relish.  

Anyway...

Debs-thinking of you and hope that everything goes well re the scan tomorrow.

Everyone else- love and strength to all of you and your families. I hope that everyone has the weekend that they want.

Tasha x

Debs

Everything crossed for tomorrow lovely. Hope it goes OK and that the wait for the results isn't too long.

Lots of love and hugs.

Pam

x