We Talk Brain Tumours

Morning, My word, I've been without the internet for a week such a lot of activity !

Hoorah to all those who have had good news this week, long may it continue.

To those who are in a bad place,I wish you peace.

Debs.. take some deep breaths. We are all rooting for you !

And to Dawn, I too am losing my boy to this stupid disease. Although, hopefully we are quite some way off Dan's demise I feel your pain. My sincere and deepest condolences to you and your family. God Bless.

Training session for the sponsored walk tomorrow, up and over Aldermans Hill, Saddleworth at 10.30 ish. Anyone in the area interested in joining us, leave a message please.

Lets hope the weekend is gentle, if not good for all of us.

Anne x

Good to see you back MrsSG. Sorry news not great but as you say , your hubby is very stubborn and this beast grows in many different ways...sometimes a big growth does not have as much effect as a tiny one. Hugs and hope the party goes well.

i too cannot post on iphone or ipad. I suspect it is me and hopefully someone out there will have more knowledge? Pete?

love to all.....especially to Deb and Dawn and those on Saddleworth Moor today...if the weather is anything like it is up here...I take my hat off to you.

Cathi xx

Thinking about Debs today and hope for a stress free day.

I'd wear a dress for the day if it helped you feel any better...

Sorry Cathi.  I'm no real expert on iPhone/iPad.

I'm just thankful that my laptop remembers my password for the Mac site.  I have no idea what to do if it gets lots.

Joanne, thanks for the info, will take it on board x

MrsSg, hoping you have had a lovely afternoon and that your little boy has had a wonderful day.

My phone just lets me read this site and not post, even when logged in. It was a pain when we didn't have the laptop for 5 weeks!!!

I had a nice day with my girls and my mum and dad (he didnt go for his walk in the end). Just did a few shops in town and went off to a garden centre for lunch and a wander before going back to theirs.

Pete-I'm beginning to think you secretly enjoy wearing the dress!!!

Tasha x

Debs - hopefully it will all be over now and the veins behaved. I know the wait is the worst bit but I hope you have something nice planned for yourself this evening as a little treat.

Naomi.x

Mrs SG, I hope your son has had a lovely birthday and that your husband was able to enjoy it too. My dad's last MRI showed his tumour was 7.6cm and covering the entire left side of his brain. He lived for a further six weeks after that. And they can stabilise, sometimes a huge growth spurt then nothing for weeks. I hope you continue to enjoy lots more family time together.

Naomi.xx

Morning All,

MrsSG, like you say your husband is stubborn (so am I) and I think when dealing with BT's it's a good thing.  I hope your sons birthday at the playbarn went well (I so remember those kind of parties always came out with a headache!) and that MrSG is comfortable.

Well we left a little later than planned for my scan & got there by the skin of our teeth, first we got caught behind a bus, then a horsebox (sorry horsey people but sheesh they bug me on roads, especially when we are on a mission lol) and then not one but two sets of temporary traffic lights, both red of course.  We almost skidded to a halt at the patient drop off and Tony virtually kicked me out of the car.

I think I was more nervous knowing I had to find the MRI department BY MYSELF.  I have no inbuilt compass whatsoever and as Naomi will tell you, Queens is a bit of a rabbit warren.  Of course, numpty here was looking at the info board for MRI not radiology......der! Had to get the letter out and check to see what department I needed.  Thankfully radiology is very close the main entrance and I got there all by my little self.  I got taken to the inner waiting room and the lovely receptionist said she will show my hubby round when he got there.  He had been sneaky and drove round to oncology knowing it was shut and parked there.  After all, you still have to pay and we were not doing anyone out of their chemo/rt spot otherwise we wouldn't do it.

They didn't even go through my security checklist, but Tony did manage to arrive before I went in so I could leave my handbag & coat with him.  Got in there and warned them about my veins and that I normally need the smallest needle and please only use the hand if its a last resort.  "yes yes". Slid in, bang bang whir whir - what no music!!!!!! came out for the contrast and could hear music, they then remembered to turn it on in my earphones and course, then proceeded to talk to me which I couldn't bloody hear (what were they, some kind of comedy double act!).  As per usual, my veins were nowhere to be found, then I felt them move the tourniquet lower down and knew they were going in the hand :( I am so scared of this after King George burst my vein doing it.  I told them what happened and although it bloomin' hurt, they took their time and were careful and I haven't even got a bruise although my hand is a tad sore - but a great excuse for no washing up, cooking or cleaning I reckon ;)  slid back in, loud tinny classical music kind of drowned out the bang bang whir whir for a change.  Got a shock when they slid me out as I always close my eyes, I don't sleep but I kinda zone out!  As I left I said, "well now comes the worst bit, waiting for results", radiographer smiled and said "you will be fine".  Course now I am trying NOT to read too much into that, he could have just said it in passing.......or maybe, just maybe.......ah well not worth dwelling on that eh!

Drive home was perfect, no traffic, buses, lights or horseboxes!  We had an Indian takeaway (my choice) and I thought we'd order a film online through Virgin, couldn't bloody give our money away, not one single film we wanted to watch.  Ah well, we are £3.99 better off :)

Monday I will phone the hospital and see if I can get my oncology appt brought forward, I really don't want to wait until Feb 23rd for the results, my poor family, can you imagine living with me for that long!!!!!!!!!!!

Hope everyone else is as well as can be expected in the circumstances.  Hope Pam isn't being run ragged by visitors and that Tony is comfortable at home.

Love & strength to all who want or need it xxx

Good to hear from you Debs and it's always a delight to hear of your adventures!

Glad that the scan went ok and that you've got this part over and done with.