We Talk Brain Tumours

Hi Everyone

Not been on the site since it changed - still don't like it!

By reading some of the posts I am really sorry to hear about your Dad Naomi (Deli) abd to Pete loosing Ali - my heart goes out to you both.

My only advice is take each day as it comes and just go with your feelings and try not to let others pressurise you into doing things you don't want to do.

My thoughts are with you to Martyn (Postmark) and I hope that Doreen is comfortable in this very difficult time.

It's 16 months since loosing Steve but the memories of this horrible journey remain.

May sound daft but I am having hypnotherapy to try to move on with my life - my practical head says that there was nothing I could do to stop this from happening to us but my emotional head won't allow me to move on beyond today.

It feels like you need permission to smile again - it's coming slow but sure but this experience never leaves you.

Anyway enough if my waffling

take care everyone

my thoughts are with you all

Ann x

Thank you so much for your kind wishes Ann. Hypnotherapy doesn't sound daft to me, nothing does.

Grieving is a lot harder and more complex than I ever could have imagined and if it helps, it helps.

Thinking of you.

Naomi.x

Martyn - thinking of you and Doreen always. My father lived for ten days with no food or fluid. I worried constantly that he was hungry or thirsty and suffering but unable to tell us but the nurses reassured me that he was neither of these things. Cancer apparently alters the body's need for nutrition. It may sound strange but the ten days that day was sleeping were some of the best I've ever had with him. He raised his eyebrows and squeezed our hands every now and then until eventually he slept peacefully.

Ange - thinking of you and your daughter, particularly at Christmas. No doubt her friends are wishing fo expensive christmas presents whilst your lovely girl is able to appreciate what is worthwhile in life, albeit a lesson painfully learnt.

Pete - you are never far from my thoughts. My mum never speaks about her feelings so it helps me to see how you are feeling as it enables me to gauge her feelings.

With love to everybody on here this Christmas. For some of us it will be a somewhat surreal experience and there will be lots of "this time a year agos" for us all as we face the first Christmas without "them".

To those who have their loved one still with them - treasure every moment (even the bloody awful ones) and make a million memories.

Naomi.x

Dear Naomi and all.

You are so right about treasuring every single moment. Life is so short. Love the photo of your lovely dad on your profile.

Ange thank you so much for adding my name to your list of people you are remembering, it means a lot to me.

Pete good luck with your 'open house' tomorrow. Hope you have a lovely day.

And to all on here, good luck and stay strong.

love jmd xxxxx

Hi to all, not been here for a while but read all posts and its so sad seeing the new ones on here

Martyn love to both you and Doreen, let's hope she is just hibernating.  It's such a cold weekend, snowing beautifully here x

Ange - my heart goes out to you and your daughter, its the most exciting time and yet can be the worst for many people xxxx

Pete - have been thinking of you and hope your open house goes very well today x

Selina - so awful to read about Ben and your situation, love and strength to you x

Naomi, love the picture of your dad, hope you are coping well xx

Debs hope you had a great night out and laughed at all the drunks! x

I'm, saying hello to all the oldies too, Joanna, Julie, Cathi - wishing you the best it can be.

I',m also near Saddleworth Moor too - a couple of miles away!

Well, we lost my father in law on 28th Dec last year very suddenly, so Christmas without two parents.  Am hoping the kids are giddy enough to distract everyone.  Another night when I can't sleep with thoughts of the coming week.  Like one of you said, another of the firsts, another hurdle.

Love to you all, if I forgot to mention you I am sorry, such a lot ot catch up on  xxxxx

Well, my open day went well, but not a lot of people managed to make it (mostly local friends).  So I have a huge amount of nibbles and things left over.  Not going to do my waistline much good!!

I just heard this morning that the life insurance will finally pay out.  Frustratingly, not before Christmas though as they have to send me a form to return.  But at least I know that my financial future and house will be secure.

Obviously though, I'd much rather be living within my means with Ali by my side...

Hi Martyn

Sending you some strength and support - you have been and continue to be a hero to your beloved Doreen.

x 

Good afternoon all. Thank you again for your support.

Doreen hasn't woken at all and seems pain free and comfortable! She is snoring a lot, which of course is a feminine trait! her breathing is very jerky and her body moves with each breath. I have been putting a little pineapple juice on her lips, but this seems to get very crusty. We are using a little vaseline now which appears to be better. I am surprised that I am so calm. Whether everything will hit me later? we'll have to see. The thing I'm finding difficult is just hanging around! My normal day was so regimented, foods, drinks, meds etc, etc. We are talking to her as usual. No urine or bowel movements now. Her complexion is still good. This is a new ball game to me. The girls are still here and they are our rock.  Love to you all. DOREEN and Me XXXX

Ah Martyn.  I'm so glad that you have family around you right now.  I'm sure you're aware that this sounds very like end-game, unless Doreen is an exceptionally fine actress.

Calmness is no bad thing, especially when you've been preparing yourself mentally for this (and seeing so many of us here pass by the way-side before you).

Your calmness and acceptance will be reflected in Doreen and hopefully she will remain at rest.

All the best to you, we're all watching over you.

That is lovely Pete. Thank you mate.