Dad diagnosed, inoperable and devastating.

Hi 

So sorry to read this. 

My dad is going through something very similar. Just turned 61 and was previously very fit, healthy and active. He’s been in hospital for nearly 4 months as trying to get a confirmed diagnosis has been a nightmare!! We have been told it is also inoperable and just today dr have indicated towards his time with us being even shorter again. It appears as if time for pallative/end of life care - so would also love some help, support and advice regarding this also!!

I really can appreciate how awful and heartbreaking this situation is, I’m so sorry

Hopefully your dads team will still be able to offer chemo, radio, a stent to help your dad. You can also contact (PALS - Patient Advice Liaison Service) at dads hospital to help you speak to the right people and get your concerns across. Drs may also put you in touch with a clinical nurse too

Hope you can get a plan soon. 

Morning Moon3,

Thanks for your response, and I'm so sorry to hear about your dad. The waiting around is the worst bit isn't it - and the uncertainty of how long we have left is utterly soul destroying. My heart goes out to you and your family in solidarity with your situation.

I think it's likely my dad will be on end of life treatment too, I kept up some glimmer of hope that it could be treated, but I know it can't... And I am really struggling with the idea of losing my dad when there's still such evil in the world. My dad brought nothing but happiness, patience and kindness to the world - why him?

I spoke to Macmillan over the phone yesterday, more to just cry and have someone to talk to, the gentleman I spoke to was so kind and patient - I'd highly recommend picking up the phone to them if you haven't yet - they're very special people to do this job.

Thank you so much for your response again, it is comforting to know that there are others out there in similar situations - not that I would wish this on my worst enemy mind you!

All the best.