Supporting my sister

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Hello everyone and I am new on this website and would like to share my story with you so here goes.

I am no stranger to cancer as my mother had a large tumour in 2010 (at the age of 82) and after a big operation to remove the whole of her lower colon, had to adjust to living with a stoma which she has done really successfully ever since. Then six years later in 2016, she had to have a mastectomy due to breast cancer. I am pleased to say that my mother is still with us and recently celebrated her 97th birthday though she is now in residential care due to her short-term memory being severely compromised, following four months in hospital with two serious non cancer related illnesses last year.

It is a wonderful home with very caring and compassionate staff and we are so relieved that she is being looked after because it would be impossible for me to stretch myself in three different directions (my mother, sister and daughter) as my 40-year-old daughter has a very serious form of OCD and is currently in supported accommodation herself.

Up until now, my sister would have shared the load regarding our mother (we have had to take over all her financial and health affairs) but obviously now that my sister's cancer has returned, she has had to step back from everything.

I want to share with you how brave and courageous my sister has been. She was diagnosed with clear cell ovarian cancer following a hysterectomy in September 2019 and was told by her local hospital that she only had 12 months to live.

A very close friend encouraged her to get a second opinion and she went to The Royal Marsden Hospital who felt that it was far too early to give up hope and they took over her care and have successfully treated her ever since and I cannot praise them highly enough.

She always knew that at each 3 monthly scan she could be told that the cancer had returned and it did come back, firstly in 2020 when she was treated with radiotherapy for 9 months and secondly in June 2021 when she was put on an immunotherapy phase one trial for 17 months.This successfully held the cancer at bay and she was in remission for a long time although she had some serious side effects.

However, on January 22nd this year she found out that the cancer has returned yet again, and this time in a particularly aggressive form, in her peritoneum. She has started a course of chemotherapy and The Royal Marsden Hospital is continuing to treat her. She is happy about that because she has been with them for so long and trusts them implicitly.

So that is where we are at the present time.

Her courage and acceptance of the situation is truly inspirational and I am trying to follow her lead but as I am sure you will all understand, it isn't easy.

All we can do as a family is to take one day at a time and support each other as much as possible.

Thank you for your time in reading this message and I look forward to being a part of the Macmillan online community! Slight smile

  • Hi Laura 42, welcome to the community. So glad your sister is receiving the best treatment and that she has faith in the hospital and staff - that's so important.

    You have a lot to deal with. I can empathise there, having supported my daughter through two years of treatment for a very aggressive cancer.  Throughout this time my husband, who has post stroke mobility and cognitive impairment, has been slowly going downhill. At first, I thought it was because he was so worried about daughter, but significant changes in his behaviour sent me to the GP. Husband is now having tests foe Parkinson's or Alzheimer's.

    You feel pulled in so many different directions, don't you? But somehow we cope, because there's no alternative. Take it one day at a time and, if everyone's feeling reasonably well, then it's a good day!

    Sending love, strength and a hug. (((( ))))

  • Thank you so much for your welcome and also your support.

    You are so right about all this but I have taken comfort from your wise words and admire your strength in coping with what life has thrown your way.

    As a mother myself, I cannot begin to imagine the stress and worry of having one of your children taken ill with cancer and my heart goes out to you. Heart️

    I really appreciate your reply to my message, as for a long time I was hovering on the edge of this forum, wanting to join in but not having the courage to do so!

    It is reassuring to get a reply such as yours and I am sending love, strength and a hug your way too and I will include two emojis (I have added a heart above and a hug at the end) but I am not sure if they work on this website or not, so if they don't come through then hopefully you can imagine them! Hugging

  • We are just beginning this journey with our son, so we don't know where were we are at yet. Testicular cancer, removal soon. The shock has been like being hit by a freight train. We are focusing on the positives so far. Your, 'if folk are feeling good on a day is a good day', struck a cord. I feel in in limbo. I feel I am now living in this parallel world and just treading water. I am going to carry this thought with me. Bless you and your families all. PippaP xxx 

  • Hi PippaP, so sorry you find yourself joining this club no-one wants to be a member of.

    Agree, the shock at the beginning is beyond overwhelming. But you will cope, because that's what we do, as mums. I couldn't talk to anyone for about six weeks, really just wanted to hide the two of us, daughter and I, away and 'make it all disappear'. But you just have to take it one day at a time and trust your highly skilled medical team, who will want the best outcome for your son. Impossible though it seems, tests, waiting for results, surgery and treatment does eventually become a 'new normal'. 

    I know you will want to do everything possible for your son, but do make time for yourself too. Even if it's only a walk in the park, coffee with a friend, having your nails done or a long laze in the bath. You need to take care of yourself to build the resilience you need to be there for your son.

    You'll get there. Very best wishes for your son's successful treatment. Sending lots of love xxx

    Laura 42, how are things with you?

  • Bless you Cherry2. That was the kindest, loveliest message. I will take strenght from that. I am so very sorry that you too are a member of this horrible club, i hope that your lives are on a good path now. You are right, 1 day at a time is a good way to plod through. So much has happened in under 3 weeks and feel lucky to have our nhs. At this stage the not knowing where you are can make the mind run riot. You are right also, that as mums we have to be strong, I have been at all times for him and also with my husband, I don't want either of them to feel they  have to support me. Thank you again, your message gave me a boost. Love PippaP xxx

  • Sending many supportive thoughts your way PippaP xxx

  • Hi Laura 42, I am so sorry I addressed the last message to Cherry 2, I got confused. My brain seems to be utterly scrambled at the moment and I thought you had accidentally signed your real name and I wanted to keep you privacy. I had read this whole thread but still my brain has lost the plot. So I wish much love to you Laura and thanking you again for your kindness and Cherry2. PippaP. Xxx

  • Thank you so much for asking after me Cherry2 and I am sorry to say that last Friday at 6.15am my sister passed away, having been very ill and in hospital since the end of March and that is why there has been a resounding silence from me on this website.

    There is now so much to do and it is hard to be able to grieve properly and also be the person who is in charge of everything and I will probably transfer to the Macmillan Support Line now, just so I can talk to someone when things get tough.

    I will come back here in due course but please bear with me if you answer and I am very slow to reply because my inbox is full of messages from my sister's friends and she was much loved by many. I miss her so much already and the pain of her loss is very great. 

    However, my big sister (she was my only sibling) prepared me for all this and at the moment I am repeating a little mantra to myself throughout the day, which I hope may help others so here it is.

    'Keep calm, steady and strong.'

    Lots of love xxx 


  • Absolutely no problem and my mind is in a similar state at the moment and I read the first message and then saw the one below. It would be very easy to accidentally use your own name on this website so thank you for looking out for that possibility but Laura 42 is indeed an alias, so all is well!
    Sending lots of love and many supportive thoughts your way.  Heart️ Hugging xxx

  • A lovely message indeed and I so agree with Cherry2 about the idea of taking one day at a time and also with you, that we are so lucky to have our NHS.

    I am now on a different path and as I said, I may need to talk to someone on the Support Line as my sister's passing has hit me very hard but I need to stay strong.

    I will get in touch with the administrators to ask what the best route will be for me now that I have had a bereavement as I may need a different kind of support but thank you to both you and Cherry2 for being there. xxx