Hi there,
This is the first time I'm posting something like this ever.
My husband has just been diagnosed with liver cancer on 28th February however this was done via A&E. We were supposed to have an appointment on Friday 21st March. It got cancelled, we were hoping for more answers to where it's originated from, they did suspect the pancreas initially but then on second look from his CT scan they don't think it is. The GI team or at least the lady cancelling the appointment didn't realise it was for a cancer appointment. We went back up to A&E to try and get some answers to who we could speak with because we're in a black hole with no more information, how bad it is, although the consultant did say on Friday that it doesn't look good... Take that how you want.
It's not even me I'm concerned about with whatever happens, we have a 4 year old Daughter and a Son about to turn 2. It's them I'm worried about, they don't know that's going on, only they need to be careful of Daddy's tummy because it's sore.
I'm trying to stay positive because we don't know anymore than there is cancer on his liver. We have no prognosis, I've never had to go through anything like this before on my side of the family, my husbands dad has soft palette cancer, he is fully recovered now, his cousin had prostate cancer and is fully recovered now. I've only been supportive for my husband and his family, which you almost feel removed from.
I think I'm just having a rough couple of days after being so disappointed from Friday. I'm just so scared and can't and won't let it show because there are too many people depending on me. I also have to work because he isn't able to anymore and we're already struggling in that department as well. We rent, what's going to happen there. We're on universal credit, they didn't give anything for going into April because I had a bonus in February (not a big one either) that's all gone because he couldn't work.
I just needed to vent...
Hello,
My diagnosis was different to your husbands so can’t help with that, however, I also got UC and with UC you can claim this extra amount each month if it is cancer. A form needs completing - I can’t remember what it’s called sorry. It’s to do with capability to work.
I remember when I had chemo, one of the chemo nurses signed it for me. A professional had to sign it you see.
Maybe speak to them tomorrow and see what they say?
He could also try and claim PIP if it’s effecting him day to day with daily things and mobility.
I hope you all get answers soon. The waiting is the worst.
xx
Thank you so much for the tip! We'll definitely look into that! X
Hello there… my husband was diagnosed with colorectal cancer with spread to liver he’s had surgery and on chemo currently… we to have a young child and yes it’s difficult to manage emotion and try to be strong and try not to try to support everyone… I’m sorry that you are going through this too…
I do hope you guys get some answers asap so you can have some sort of control back over your future… do you live in the north or south of England ?
Hiya, I think it's just difficult not knowing where it's come from or whether it's primary (which they don't think it is). I'm sorry you're going through this to. You just think, that whatever comes you can deal with but it's just the kids you worry about, especially them being so young and can't understand things.
We're in the South. We're also very lucky that we have loads of people around us, friends who only live round the corner.
I wish you the best as well.
Whatever cancer throws your way, we’re right there with you.
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