My Mum got diagnosed in 2022 with a stage 4 glioblastoma. She had surgery in 2022 and was doing really well up until June 2024 when they found another tumour had grown. She had surgery in the August but suffered memory loss, speech impairment and balance issues. She has went into a hospice for a few days for some respite but a few hours ago a doctor from the hospice said that this time it looked more serious and there may not be anything they can do as she’s already had two surgeries, on chemo, on steroids and had radiotherapy. I’m trying to stay positive but finding this very difficult. We find out on tuesday from the oncologist what is the next steps but tuesday seems like a lifetime away. Any tips on how to cope with the unknown until i find out anything concrete on this? I’m only 21 and my mum is only 45 and can’t imagine losing her at this age.
Hi caylz03_, and a warm welcome to the forum, though I am so sorry to hear about your mum, I cared for my mum when she had cancer, and I know how difficult this is for you, can I suggest you join the glioblastoma forum, the wonderful people on there will be able to support you and offer advice on possible treatments, my cancer is different to your mums, so I cannot help with that, as for the waiting, keep busy, if you like exercise that's great it's so good for you emotionally, do the things you enjoy doing, spend time with family and good friends, never give up hope, it's amazing what they can do these days, the guys on the glioblastoma forum will help you there and don't go to bed until you are sure you will fall asleep quickly, my very best wishes to you and your mum.
Eddie
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