Hello everyone,
My lovely partner was diagnosed with colon cancer some six weeks ago now. The pathology from the colonoscopy showed fragments of severe dysplasia suspicious of adenocarcinoma. Severe dysplasia was also found in other areas of the colon. The CT seemed okay, apart from a 3mm nodule on the lung, which we were told could be the result of infection and not a cause for concern. He had major surgery four weeks ago (panprotocolectomy) as he has Lynch Syndrome.
However, the post-surgery pathology report still hasn't been done. My partner is taking a pragmatic, day-to-day approach to this; I am constantly anxious, am having nightmares and I can't sleep properly. I don't want to add to his stress by talking about this too much, but it's always on my mind Initially, we were told that it would take a fortnight for the results to come through. I found out last week that there is a backlog in the lab. I don't want to add to his stress by talking about this too much, but it's always on my mind.
His case was due to be brought up a fortnight ago at the MDT meeting, then last week, but was postponed as the pathology report hadn't been done. He's due to be discussed this week and is to be seen next week at the clinic.d
I don't want to add to his stress by talking about this too much in front of him, but it's always on my mind.
My question is, how does one cope with the uncertainty of waiting for results? I have been trying to garner information about what might lie ahead, but we are just told to wait for the pathology report. I'm so anxious and teary all the time now.
Thank you so much for reading this.
hi Fi24
Welcome to our community though sorry to hear about your story so far. Many of us struggle with waiting for results and we have some information on that here.
There is quite a lot of information on the main site about colon cancer but I guess some of that might be somewhat less relevant given the surgery he has already been through. I wonder if it might help to ring the helpline and discuss things with them.
I find some of the information in your feelings when someone has cancer is really quite helpful, being able to recognize the emotions and accept them as valid can help to make them a little less overwhelming.
<<hugs>>
Steve
Hi I’m also waiting for results, I had anal cancer, I was diagnosed 18months ago. Went through chemotherapy and radiotherapy and got the all clear, still clear after 6 months scans an then a little over 12 months and I had mri come back with result's that show changes, I’ve now had PET scan on 1st November which my oncologist has said is likely to show the cancer has come back , it goes before the MDT meeting tomorrow, but my 1st available appointment for the results is 26th November. I’m incredibly nervous about this,having gone through nearly a year of treatment and illness I finally thought I was going to be ok. I have coped by just keeping really busy, throwing myself into work and just telling myself if it’s back then I’ve been there before and I’m just going to fight it off again, I’ve got too much to live for. Hope you get the best results possible. Take care, and your partner may be wanting to talk about it, but doesn’t want to worry you either, I had that happen, it helps to bring you together if you can share your emotions xx
Dear Jumin, thank you for taking the time to reply to me. I really, really feel for you waiting for results, and I so hope that you get news quickly. My partner's surgeon was great in that he called us in when the pathology report became available - it took four weeks to be done. But I know that I found the uncertainty of waiting so very difficult to cope with and I froze in suspended animation, unable to work or even to go running, which is my go-to way of managing stress. The future is hopeful, and my partner and I are very close, and we do talk a lot. I really admire your positivity and I wish you all the very best on this journey. Please do message back if you are still waiting for results - it's incredibly difficult. Take care. xx
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