Hi all,
My dad has recently been diagnosed with Large Cell Neuroendocrine Carcinoma. It's been very difficult getting accurate information from my parents because my dad won't talk about it and my mum seems firmly in a state of denial.
What I have been told is that it is in both lungs and his lymph nodes, and I think he had a biopsy two weeks ago to see if it is in his adrenal glands. He has had three other scans and two out of the three indicated cancer in his liver.
Mum has told the rest of my siblings that it is stage 1B, and that dad could be around for the next 2-5 years, but I was under the impression that if cancer is in both lungs, that usually indicated stage 4.
I live in the UK but the rest of my family all lives in Australia. I just don't know what to do right now, whether I need to rush back immediately or if I have more time?
Does anyone here have any experience with this particular type of cancer, or how to deal with tricky parents?
Hi ClockworkCherry and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.
It sounds like a very difficult time right now so I can understand you wanting to find others who have experience with large cell neuroendocrine of the lung.
As you know, the online community is divided into different support forums so I'm going to recommend that you join the lung cancer forum which is a great place to ask questions and share experiences with others who have a similar diagnosis to your dad.
To join, just click on the link I've created and, once you've joined, you can start a new post in the same way as you did here and join in with existing conversations by clicking on 'reply'.
It would be great if you could put something about your dad's diagnosis and treatment to date into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.
"Never regret a day in your life, good days give you happiness, bad days give you experience"
