Grandad diagnosed with mesothelioma - not eligible for treatment

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my wonderful grandad was admitted to hospital a few weeks back after suffering with covid and pneumonia. He has been in and out of hospital since october with severe chest pain and kept getting discharged with doctors having no clue on what was wrong until last week. He has had pleural placques and asbestosis from exposure when he was 18 (he’s 86 now!!) so he has done extremely well to get this far but unfortunately ct scans have showed a growth in the lining over the past few months. I’m really struggling to come to terms with this and can’t stop getting upset (crying hysterically) he is not eligible for treatment as they say he is now too weak and the nurse has said he more than likely has months than years which is a huge shock. It has spread to nearby lymph nodes in his chest so we do not know the stage. Just wanted some advice on how to cope with having a grandparent become terminal so quickly straight after disgnosis and what to expect. I idolise him as he pretty much raised me and was more like a dad to me than a grandad. I have spent the last few days with him and he seems ok (still walking, eating etc) and does not require any care as of yet

  • Hello Db1122 and a warm welcome to the forum though i am so sorry to hear about your grandad, though i have cared for many with terminal cancer non had plural mesothelioma so i only know what i learned at college which was over 15 years ago, so not sure if  relevant now. I did though care for mum who passed away 4 months after diagnosis and she received no treatment. the emotions are still the same though, the heartbreak, sadness and the tears, As i have no personal experience of your grandads cancer i can't tell you what to expect but can tell you, you will find a way to cope, we all do, try to make things as normal as you can, help him to be as independent as he can safely be and make the most of the good times as there will be difficult days. the macmillan cancer info and support page has lots of information on mesothelioma and how his condition may change. I wish both of you well, take care

    Eddie

  • Hi my lovely 

    I'm so sorry to hear your sadness.  Wish I could give you a big hug . 

    I find it helps just to live in the here and now.  I'm also struggling this morning.  My son (24) has been told his cancer is still there and will need 4 more cycles of aggressive chemo.  This cycle is making him feel ill.  He's ashen and his face is so puffy that he's barely recognisable.  But today, he's alive.  I can be with him, talk to him and hold him.  So I'm living in this moment and making the most of today and whatever opportunities it brings to help me enjoy having him around.

    It's a technique I learned from a clinical physiologist who worked with terminal cancer patients to help them live as well as they could in the time they had left.  She was in her 40s when she, herself, received a terminal cancer diagnosis.  She released a video to help future cancer patients and I found it inspirational.   She said that she knew that some days she wouldn't be able to walk as far as her own front door and she would deal with those days when they came but "today I'm ok' and that's what she focused on.

    So I guess as a relative, you deal with the bad days moment by moment.  Know that one way or another the bad days will pass.  And on the good days you tell yourself, 'today he's still here and I can see him, hold him, talk to him, make memories with him." If you find that today you're OK, remind yourself of that and run with it. 

    Sending love. xx