My Dad was diagnosed with terminal liver cancer, hep c and cirrhosis last year. He's been having immunotherapy, but it's now spread to his Portal vein and he had a big internal bleed last week, in his upper GI. He's been discharged from hospital as he wouldn't stay in and he's now saying he doesn't want the treatment or scans anymore. In a way I think he's making the right decision as he's too weak now for all this. I'm making sure he's comfortable and has his pain meds, but I'm getting scared because the help seems so disjointed and he only has me.
I've called the palliative care nurse and they'll pop in for a visit to him, but I'm feeling we need more than this and my Dad's a hard person to help, as he only talks to me. This feels like the battle of our lives and I'm going to call the doctor tomorrow to see if they can carry out a home visit. I think we're nearing the end and I just want him to be comfortable and pain free. It's breaking our hearts and I'll never know if I can ever prepair enough for this.
God give us all strength, I just came here to share with folks who I feel might be going through it too ️
Hi KRH
Glad to hear you are getting some support for your dad, it can feel something of a battle getting care in place and even more so ensuring carers get everything they need too.
There is some interesting work going on around good grief, I went to a friends funeral recently and the celebrant said that grief is the price we pay for love and that really registered with me.
Thank you for sharing on here, I think we make a great team mostly because we all struggle some of the time - I know I have had a really difficult time in the past.
<<hugs>>
Steve
Thank you Steve for your kind and supportive words, it's much appreciated. Just knowing I can get some of how I'm feeling out makes the load a little lighter because at times I've not known where to turn and don't want to burden others. I know that this is a safe space and reaching out is a sign of strength, not weakness. Again, thank you - I'm taking your words about grief being the price we pay for love and adding them to the thought that I really couldn't have asked for more of my Dad this past year. He's not let me down and I can only hope I've not let him down either.
Best wishes
K xxx
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