Out of the blue

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Hello everyone,

I'm new to the forum and joined because I don't know how else to manage this.  My son has not yet had his biopsy but has been told by an A&E Dr that lymphoma is the most likely cause of the sudden swelling on his neck.

He woke up 48 hours ago with a huge lump on his neck.  He went straight to A&E where he baffled the nurse and consultant. The lump feels like it's on his muscle over the lymph node.

He had blood tests, ultrasound, CT scan and chest xray and after all of that he was told byva different Dr that it is likely to be lymphoma. 

He has a biopsy booked for Thursday.  In the meantime, the lump seems to be growing and he told me last night that the Dr seemed to expect this and that if it begins to restrict his breathing then he has to go straight back in to A&E.

I'm wavering between believing that it's madness to think it's cancer and that the Dr was too cavalier in telling him that it is the most likely cause to believing it is cancer.  The wait for the biopsy is hell enough but from what I've read it then takes a further 2 weeks for the results.

Is it usual for lymphoma to present so dramatically and so suddenly? Does it mean that this is particularly aggressive and by the time he gets a proper diagnosis it'll be too late to treat?  What if the lump gets so big that he stops breathing in his sleep?

He is in his mid 20s and lives a two hour drive away.  His brother and I drove over there to pick him up and bring him home for however long he wants to stay.  His biopsy and any treatment will be in the city where he lives and his brother and I will try to be with him for every visit. 

How do I comfort him?

Any words from those who have been down this path would be very welcome please.

Many thanks xx

  • Hi  

    Sorry to hear about your son. Just about everyone here will remember the route to getting a diagnosis and it is rarely easy.

    Perhaps the first thing might be to look at our pages on lymphoma so that you have a better understanding of what he is being told. Often the next most important thing is to look at our own emotions - even harder when it is your child than in other cases of couse.

    <<hugs>>

    Steve

    Community Champion Badge

  • Thanks Steve. 

    I have no idea how to handle this.  He is so low this evening.