Feelings of rage

  • 3 replies
  • 19 subscribers
  • 472 views

Just wanted to vent if possible- my gorgeous partner of over 20 years has multiple myeloma. It can on gradually and we I Italy thought it was a bad back which he had suffered from for years due to the physical nature of his job - long story short he became very I’ll over the pandemic lost a lot of weight and was eventually admitted to hospital whereupon due to the pandemic he went into A&E and I didn’t see him for 5 months!!! During this time we got the diagnosis, he spent weeks in ICU in an induced coma, had a tracheotomy, learnt to walk again and generally it was fun all round !!!! He eventually came home in the summer of 2021 and has done well and thanks to amazing carers is semi mobile. It has of course been life changing beyond belief for him. HOWEVER there are times where I just want to shout what about me !!!!! My life has changed too- he is much needier, wants me closer at ALL times - thank god for my job - I’m a special needs teacher- I spent the whole time and continue to be the one who holds all the emotional fall out, remembers appointments, orders drugs, manages and fields social interactions and continues to smile - I am very lucky I have great friends I can vent to but sometimes honestly I just want it all to end- I want my life back- I know it won’t be the same and I am so grateful to still have him but I often just want to scream!!!

Thank You for listening 

  • Hi Mulberrybag, just read your post and like you I feel exactly the same.  My husband was misdiagnosed 2yrs ago, turned out he has stage 4 oesophageal cancer and not a hiatus hernia!  Yes life has changed for us too as he was only given a short time and more recently just a couple of months.  I can't get my head around how it once was and how it's so changed.  I have made many phone calls to various people to get help.  I am sorry to hear about your situation and wish you all the best.  Sending a hug. xx. Pippi

  • Pippi

    Thank you so much for reaching out

    Sending hugs back along with a pillow to scream into Hugging

  • Thank you for the pillow I'll use it to cry into.  It is comforting to know others are on the these forums to offer advice and always there to chat to if you feel down or lonely.  x Sue/Pippi