My whole life, I spent desperate to get away. Get away from the emotional torment of my father and my parent's toxic relationship. My earliest and most prominent moments of my father aren't happy ones. He's emotionally neglectful and absent. He's a drunk. He scares me. I went through a phase where I confused my fear with anger, that anger was easier to understand than my fear. I'm an adult. I moved back in with my parents after a traumatic situation with a former best friend and roommate. The past year for me has been self discovery. I have ADHD and CPTSD. I've been grieving the loss of the person I thought I was; lazy, unmotivated, destined for a mediocre existence. For the past month, my father's health has rapidly been declining and his emotional abuse has increased as a result. He is the type of person who sucks the happiness and safety out of a room without uttering a word. His stumbling around and increased deplorable attitude left me feeling on edge and desperate to escape. Too much of it all resembled his drunken stupors as a child.
On Friday, he couldn't stop falling so my mother called an ambulance. On Saturday we learned he has three masses on his brain, one on each side of his brain and a mass growing out of the one on the right. On Sunday, he has brain surgery and is under the knife for at least 7 hours. There was hope that it'd be a brain abscess, an infection. They did complete scans of his entire body. It's not secondary; everything else in his body is functioning on par with a man of his age. This only made my family more hopeful for a nasty infection. Instead... the doctor found a big disaster instead. The tumors were the size of orange. One of the masses had ruptured, there was blood everywhere. He was able to remove everything and he apparently already got an MRI after surgery, I'm guessing to see the damage and if there is anything left to treat with oncology.
Surgeon is pretty sure its malignant but the biopsy results won't be for a few days. If he had a guess, these tumors started at least two months ago. I'm a very realistic person. I found my ADHD has influenced the way I see the world, probably my trauma too. Everything is black and white to me. It's easier to already assume the worst and this will be the end of him in very rapid succession. I don't know how to feel about that.
I'm so conflicted because I do have hope for my father while simultaneously feeling a sense of safety in my own home I've never really experienced. I can make as much noise without being scared of a negative response. I'm not hiding in my room for a sense of safety in my personal space. But my dad is likely dying. I don't really think there is any wiggle room for a 'miracle' in this case, that miracle that everyone else is holding onto. Don't get me wrong, I wish for that too while at the same time terrified of the emotional impact of him coming home in such a vulnerable state. I go from feeling like I am going to be okay and I can handle whatever happens, to explosive flashes of overwhelming dread with panic attacks and stomach issues. I'm scared and I don't even know what I'm scared of. The impending change? The uncertainty? My own grief? Probably all of the above, if I'm honest. I keep disassociating, so my moments of clarity when I realize this is my life now hit me hard.
I feel like there's something wrong with me, I'm not upset enough, I feel. I should be in shambles. I should be desperate to go be by his side yet nothing fills me with more dread. The thing is, I am upset. I am in shambles. What a bizarre, cruel trick my mind is playing.
Hello Emandem,
I’m Dylan from the Community team. I hope you don’t mind me posting here today. I wanted to offer some support whilst you wait for other group members to reply.
I was very sorry to read about all that you have gone through with your father and with your former roommate. It sounds like you are currently processing many different emotions, and it's understandable that you don’t know exactly how to feel at this point.
An important thing for you to remember is that you do not have to navigate this alone. Take care of yourself and seek help and support when needed. I have listed a few points of contact that you may find helpful now and moving forward:
You can contact our Support Line today. Our support team are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat. They’re here to chat, and they can also help with any questions you have.
If you ever feel you might need some immediate emotional support at any time, please remember that there are 24 hour support services available alongside the Online Community. These include the Shout Crisis Textline. If you need immediate emotional support, you can text SHOUT to 85258 and talk to a trained volunteer. The service is free on most networks in the UK and available 24 hours a day.
Mind, a UK charity which specialises in mental well-being, have a webpage on looking after yourself and ways to cope with feelings of anxiety. This might be helpful to look through. Mind also have information about their helpline and other ways to find help on their website.
Penny Brohn UK provides free counselling for family members who want to talk about how their cancer affects them.
Turning Point provides social care services for people with a wide range of complex needs including mental health, and alcohol and drug abuse. They offer support to both addicts and family members of someone with an addiction or issues with alcohol.
By sharing your situation here, you have taken a positive step, and I encourage you to continue to speak whenever you feel the need. You might find reading through and posting in the carers only forum helpful. There may be someone in a similar situation to you there.
I hope you will find the Online Community supportive and helpful. If you have any questions or need any further support please get in touch.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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