Feeling lost and numb

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Hi

I joined a couple of weeks ago but needed time to feel able to post anything.

My auntie (dads side) was diagnosed in around October with lung cancer which had already spread to her brain which was a shock i was also worried about my dad as other than me she is his last living relative and hes always been a bit of a free spirit until the lasr few years 

In around November my dad had pleuresy which wasnt improving on top of his COPD he went to the doctors and theu sent him for an xray which showed a mass in his lung but they wanted to allow the pleuresy to clear up before doing anythoing further.

He eventually had some more tests and it came back as lung cancer they sorted a biopsy to have an idea on next steps which was hopeful atleast for him but it didnt go well

He has only just been releaased from hospital after being i  for around a month due to his lungs collapsing from a complocation of the biopsy he is home but still with a tube in his chest attached to a bag they have now come back saying due to his health in general, how fragile his lungs are and due to him still not fully recovered from the collapsed lung they cannot do any treatment or knock him out for.surgery as he wouldnt survive. The doctor has already started advising him.to sort out end of life care and said with how everything is they wouldnt expect him to last mich passsed 3 months.

It fesls like my world is crumbling due to the whirlwind of it all im going to sse him in just over a week as i live 200 miles away and he refused for me to visit until he was home, he has also stated he will not allow me to see him towards the end as he does not wish for me to see him like that.

My mum and brothers (different dads and mums remarried years ago) dont bother, ive tried to reaach out but they just said sorry for the bad news no support from them which isnt suprising my husband and his family are my only siupport system and have been my rocks but i just cant stop feeling down having nightmares but also dreams that wake me with saddness and im so up and down right now like im spinning and cannot stop to focus is this normal

Sorry for the long post just needed to get it out! X

  • Hi @mrsd17

    Sorry to hear about what your dad has been going through and he impact on you. Well done for posting on here, it can be amazing how just typing this out to total strangers can be helpful.

    If you might find it helpful to talk to someone using our in your area tool you can find support groups near you but you would also be welcome to ring the helpline too and post on here whenever.

    <<hugs>>

    Steve

    Community Champion Badge

  • I can relate a lot to what you said about the emotional rollercoaster. You just have to try and take things one day at a time and try and do things that are good for you. Exercise, eating well, drinking water, socialising etc. 

  • Hi   I so feel your pain sweetheart.  My husband is about to have a biopsy but they have now told him that the cancer is everywhere but no mass found so they don't know where to start.

    It's like falling with no one to catch you..

    As you can see I have no answers for you but we are all here and you can tell us what you need.

    Huge hug

  • Thank you for the responses ive been a bit absent since my post just trying to get through each day its so lovely that it feels like im not alone but at the same time wish none of us had to be going through any of this in the first place.

    Ive been burying my head a little these last couple of weeks aiming for this week as been able to see my dad after all of this happenig but at the same time wishing it would drag out as i know once i leave today i wont be seeing him again which is his wish and however much it hurts i understand and respect him especially as nothing could of prepared me for how he looks im overwhelmed with love but also sadness as its made it all so much more real but also having to do the hard conversations like what he wants at the end and when hes gone huge hug to you all

  • Huge hug back to you !!   Please be safe on your drive  to see Dad.  Take it slowly. I know what it's like when your mind starts wandering.  Our dreams and wishes for you and your Dad .