Hi all... long time no post.
My mum was diagnosed with lung cancer (adenocarcinoma) in December 2020. It's been - as all cancer journeys are - a rollercoaster of emotions and ever-changing information/prognoses.
The bottom line for now is that she is no longer receiving any treatment for the cancer, but when she was still on treatment, she had a stent fitted to her kidney as she had a 'duplex kidney'. My understanding was that the purpose of this stent was to assist with the treatment running through her system effectively.
Given that she hasn't had any cancer treatment for several months, I'm at a loss as to what the point of the stent is anymore.
Since her latest swap of it (this is her 3rd stent), she's been in pain, had blood in her urine and her quality of life has gone from mostly normal/good to next to none at all.
My issue/query that brings me back to the forum is the lack of care she's receiving and what people would suggest I do in this situation. She's been passed from pillar to post - oncology don't want to know because it's not directly cancer related, the GP's are being worse than useless (this particular surgery has genuinely been marked as 'inadequate' and is under investigation, which doesn't really help her in the here and now although we hope it does mean future improvements...)
She is calling all the numbers in her arsenal on a daily basis and is exhausted, and I'm frankly heartbroken just watching it all unfold. We accept that if this is the cancer taking hold and the start of her decline then it is what it is, but how can we possibly know that when no one is seeing her or treating her?
Thanks in advance xx
