My dads fight with synovial sarcoma.

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Hello, I am new to this group. My dad got his first tumour in his right arm about 2 years ago and had his arm amputated due to it growing too fast. It then came back in his lung and has had a third of his lung removed a few months ago. However it has now came back already but this time there’s 3 new tumours in that same lung and it’s too aggressive so is inoperable and incurable. He’s been given weeks maybe months left to live. He has gone into hospital today for his first round of chemo but has had to be admitted for 2 days as it’s such a strong form of chemo. However the past few days he has been making no sense, really confused and just really delirious. Was wondering if anyone else has experienced that in later stances of cancer? I’m really struggling, I’m 21 and my sister is only 15 so I’m trying so hard to be strong and keep my family together but I am not sure if he’s already too far gone for them to even do chemo as he’s so confused and so ill. Or if the chemo will make him worse. Really worried and would love some advice also ways to deal with this pain. It just doesn’t seem real, I still can’t and refuse to believe he doesn’t have long left. It’s so quick how it all happens it is so cruel and not fair. Any support, advice, Information welcome. Thanks. 

  • Hi lovely. I just wanted to send you and your family a big hug. My dad has got incurable cancer and we are on the slow path of watching him decline quite rapidly. It is so blooming hard watching them being consumed. But we have to cling on to rebellious hope. Not always for a cure, but the hope and determination to fight and continue the fight for them and with them. Stay strong and know there is an entire community behind you xx 

  • Thank you. Sending you big hugs and support too. It is extremely hard and sad how fast it’s happening. He went in for chemo yesterday however is so confused he took the chemo out 6 times in the night so not sure if or when they’ll try the chemo again. He keeps ringing me asking why he’s in hospital and where I am etc it’s really hard. Just don’t quite know where to turn or what to do with myself honestly, trying to be strong for him and my family but I feel as though my thoughts are constantly racing and I’m so agitated and restless. So hard knowing there’s nothing I can do. Still feels very surreal. Hope you’re okay and I’m sending much love and hugs to you and your family too. Always hear if you need a chat with someone who understands. Xxxx

  • That sounds very tough. Is there anyone else in the family that you can confide in? It sounds like you're taking on so much.  

    I understand about the racing thoughts. It's why I find myself on here at all hours. I'm afraid to sleep because my mind imagines/tries to process a world without my dad in it. Then those thoughts consume me and I can't sleep   

    At times like this, I have looked for the love during the tremendous pain. The world seems like such a cruel place and our dad's are being affected by this horrible illness but I'm trying to look at all the love I'm being shown.  

    If you need a shoulder to cry on, I'm here xx

  • How are you? 

    I have thought of you often.

    I sadly lost my dad 3 weeks ago xx