its been a few days since i posted ...my husband has started chemotherapy for his cancer ..hes been put on sotorasib tablets which he takes at home daily ..we were warned about side effects but so far he hasnt had any ..its been 6 days since he started them and so far so good .....
we saw the respirologist consultant yesterday who is very pleased that my husbands lungs are back to working as normal as they can considering he is missing paart of one lung because of cancer ...the concultant also mentioned that my husband has copd fairly mildly and haas now prescribed an inhaler for him to help keep his airways open so less chance of infection ...we are happy about the lungs and the consultant was very happy and showed us the xrays of my husbands lungs explained that they looked very good ...a small miracle we said but we will take that and enjoy !
as we left the hospital i teased my husband that he wasnt content to have cancer he now has copd as well as graves disease ....he just laughed at me and said " well im still here arent i " ...
he is still a bit tetchy and wont talk to anyone about how he feels ..just unloads on me when it gets a bit much for him ...
im used to that now and told him that although i know its the cancer talking from now on when he starts making snarky remarks im going to swear at him and walk away and put space and time between us until we both calm down ..i think its the best way ..we both love each other but being in a difficult situation is not good for both of us so space and time is best for now ..
im back to watching bruce lee films again lol .....its very frustrating for us at the moment because between hospital appointments and dealing with our surgery issues plus his medicine regime ,,,it makes it hard to get anything done around the house ,,but i think taking it one day at a time and only doing what i can bit by bit is the only way to get anything done ,,,he does try and help as much as he can ,,i know he gets frustrated as he gets tired quickly but thats the way life is at the moment ..ive had health issues which have been put down to stress and anxiety ,,,i mean being asked by a doctor " are you under any stress lately ?" makes me want to say " no shite sherlock ! " ...when i told the doctor that my husband has cancer he said " that would do it " and that was that lol
so i just potter about swearing under my breath ..with style i might add !..and get on with my day hopefully without any stress .....
i think when you are caring for someone with cancer you lose yourself ..you are just focused on getting through the day without drama and hospital visits while trying to maintain a fairly normal life ..its difficult and sometimes i just want to run away but then i realise that hes still the man i love and that there is hope and thats all i need at the moment ....
hope everyone has a good day today xx
Thanks for the update. Sounds like things are going ok at the moment and I totally get your appointment with the GP.
Sometimes people will say to us "how do you cope?" and the simple answer is that we were not given a choice.
<<hugs>>
Steve
hi src60
its been hard ....other night we had a 3 way row over nothing really ...it got unpleasant and things were said that shouldnt have been said...
it calmed down eventually and apologies were given ..my husband denies that the cancer has caused his behaviour to change and made him more irritable or short tempered or just ratty ,,,,thats the thing about cancer though..its the mental toll it takes on everyone ..he wont talk to a therapist even though the macmillan nurse said he should but he refuses to accept what cancer has done to him and everyone around him ,,hes too busy fighting the cancer and trying to carry on as normal i think ....thats the side of cancer no one thinks about though ..and you just get on with it and pray for a better day next time....you dont get any say or choice with cancer and yes its frustrating and sometimes even heartbreaking but thats the life we have now and talking to someone doesnt really make a difference as it doesnt help to cope with it all because its different everyday ..i still love my husband but some days i dont like him lol ....im not saying im any better as its all new to me as well ...but we get up start a new day and hope that things get better .he now has medicine for copd to take as well .....
i think sometimes that because he feels like he has no choice and all he can do is take the pills and do what the doctors say and wait its making him more frustrated ...and i cant do anything about that and as ive said before my husband is a natural pessimist so he will always see the bad before the good ..so its walking on eggshells sometimes not knowing what will make the situation explode ..but we do what we can to avoid conflict and ive learnt to not respond as much to him when hes getting impatient ....
i think thats the unseen side of cancer that no one sees or talks about really ...you cant address it as every time its different but you just muddle through and onto the next day ..im an optimist by nature so i always try to think of good things even when im feeling angry or annoyed ...
take care and have a good day
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