My older sister (42yo) had some breast lumps diagnosed as pre-cancerous, and had genetic testing that shows she has the CHEK-2 gene. She'll be having a lumpectomy, radiation, and possibly one or more profilacric mastectomy. This has all come very fast, and I find that I am feeling completely self-centered about all of this. Part of this is due to the fact that every time my sister tells me new information, she says that I need to know and get tested myself because I and my daughter (5yo) are at a much higher risk. She's 6 years older than I am and has often talked to me about her problems as if they are mine, probably as a coping mechanism. In the past, I could set that aside-- its easy to separate her marital problems, for example, from mine.
But right now I think my way of coping with her diagnosis is numbness, while I feel absolutely terrified about my own health, which is currently fine with no diagnosis. I feel selfish, even though I know that this is probably just my current way of coping with this information. But the hardest part is that I am dreading hearing from here and don't even want to reach out because I feel like she is telling me about me.
I wonder if anyone else has experienced anything like this? It would be helpful to get supportive comments that help me see a way through to feeling less guilty about feeling so me-focused. I know my sister's cancer is not about me, but only on a factual level at the moment.
Thanks in advance for your compassion.
hi Southpaw
There is a whole slew of talking that anyone would need to go through before genetic testing and of course only a 50-50 chance of you having the same issue as your sister.
On the one hand I am happy to hear that your sister is talking to you and sometimes being big sister can be an interesting relationship, I can see you recognize that though and glad you reached out on here.
It might help you to look at our pages on genetic testing and perhaps especially the item on genetic testing in children.
<<hugs>>
Steve
I really appreciate the kind response!
I am a bit over a week out from my original post, and I've moved past the feeling like this is about me.
I gently told my sister that I appreciate her concern for me but that I will take care of my healthcare like she is taking care of hers, and that now is the time for me to support her. I realized that it's easy to fall into old roles but we both have a part to play in our past dynamic-- so if I want to change the dynamic now, I can't try to make her change, but I can decide not to play my old role.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2025 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007