I don’t know how to do this

FormerMember
FormerMember
  • 2 replies
  • 19 subscribers
  • 676 views

My (26f) mum (57) has been diagnosed with a bowel tumour and metastatic lesions on the liver. The bowel isn’t the problem right now. It’s the liver. Prognosis is bad. They can’t drain so it’s going to start failing. Can’t improve the liver can’t start chemo for surgery. Can’t go into remission. She’s jaundiced and starting to feel discomfort. Jaundice only noticeable Sunday 17. Diagnosis Monday 18. Told last night Friday 22 there’s nothing that could be done.

I don’t know what to do. I can’t bear the idea that soon she won’t be here. We don’t know if it’s weeks or months. We’re not sure if we want to know if it will make it better or worse. Everything was fine last week. She had no symptoms so we have no clue how long this has been going on for. Something could have been done sooner if only there was symptoms. 

I live with my mum. I’ve had horrific anxiety, depression and clinically diagnosed ocd since I was about 12 and been on medication since that fluctuates whether it works or not so I’ve always found things difficult. Just life basically. Honestly she’s taken better care of me than she should’ve. 75% of the meals she makes. She handles all the bills, I just give her my share as we split them all pretty much 50:50 but she does all the technicals. She does all the washing, I put it away. She loads the dishwasher, I empty it. I can’t use either device and I’m constantly messing up with darks and whites.  I’m trying to get my drivers license  but covid and my anxiety makes it hard to pass cos of my confidence. I work nearly 50hours a week at two jobs and she drives me, I drive my car when I can.

when my mum goes, I will lose our house. I Can’t afford to live there by myself and as it’s a council house, with my wages id never be able to get my own place. We can only just afford it the two of us together.  I have my brother (30) up in London with a spare room  maybe I’d live with him  but I’d leave my jobs and my sister and niblings as well as my grandparents  I could live with my grandparents who are just up the road but they’re both in their 80s and the idea I could lose them soon too is heartbreaking. I feel like I’m not prepared to be an adult even though I should be well on my way to being independent. I never went to university so I’ve never lived away from home. The past few nights staying at the house by myself with just the cat has been excruciating.

i feel like such a bad person for thinking about things like this. About what’s going to happen to me when she’s gone. By this age my sister already had her own place and two kids with quite severe health problems in infancy. I don’t know how she copes. I don’t know how she can just live life so much easier when I question and fret about every thought and feeling. I feel selfish. My sisters trying to take care of me, my grandparents are when they’re both in bits cos they’re not supposed to lose their daughter. I can barely take care of myself and the cat. And I feel so guilty when I can’t reciprocate. 

I know I can prepare myself to learn the things I need to. My dad is distant but he’s here. My sisters here. My brother. My grandparents are old but they’re here. But I’ll never be ready to lose my mum. When I get married and as I get older, her not being there makes me feel sick. I can’t eat. We had so many plans. We’re going to on holidays more, get a dog. These past two years barely felt like they’ve happened with covid and everything. I’m not ready to lose my mum decades before I was supposed to. I’m not ready. For life without her and a me without her

  • Hi

    Sorry to read about what has been happening to you and your mum. The best news I can see is that there is a little bit of a team with you. Your feelings are really not so untypical and often impacts on the liver can be a significant problem since that is rather important in standing up to chemotherapy.

    I do not really have any answers for you but want you to know you will be in thoughts.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember

    Hi HanBoo. Sorry to hear about your mum, i am too going through something similar. 

    I am also young and the idea of my mum not being here and 1. Her missing out on things we had planned and 2. Having to do ‘adult things’ without her support is very scary. I am sorry about your financial situation but I know Macmillan have a great team of support when it comes to that and you can phone them on their support line and they can maybe tell you about your housing situation when your mum passes away and what benefits you will be entitled to. Maybe even contacting your local council or benefits centre to ask might help as well. 

    As for the mental health side of things, maybe contact your GP or again phone Macmillan to see what they can offer you regarding your anxiety etc. It is hard to think of all the things your mum will miss because i feel the exact same and i also have a younger brother and sister who i know my mum will miss more of their big life events. It is like you are grieving the life you could’ve had with them even though they are still here. It sounds harsh but it is just something we have to come to terms with as children of parents with terminal cancer, though it doesnt make it any easier. Try and talk to your siblings as they will probably be thinking the same things as you.

    Not sure if that was any use but you are not alone. Sending hugs x