Mum's MDS

FormerMember
FormerMember
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Mum was diagnosed with MDS Christmas eve 2019 and then 4 weeks ago was told she had leukemia cells in bone marrow. Since January she has spent approximately 4 months in hospital. She is in at the moment and is now having platlete transfusions every 2-3 days x Its heartbreaking to see my dad so sad they have been married for 53 years and due to covid is unable to see her x I feel like an emotional tine bomb at the moment trying to stay strobf fir ny kids and for dad but dibt know how long for xx 

  • FormerMember
    FormerMember

    Sorry for horrendous spelling x

  • Hi , sorry to hear about your mum, with covid too is makes everything extra challenging at a time when nobody needs that. 

    The staying strong bit can be easier said that done though, I know I came close to cracking before I got some help. There are a number of tips we have here on Looking after someone with cancer and perhaps one of the most important lessons can be to remember to look after ourselves too. One of the wonders I find in the community is we all know it is hard but here we can talk among ourselves with people who know how difficult it can be but who also recognise that there we will survive more challenging days and that can help us to treat other days in a way that can make the most of them.

    You talk of kids, some people find it hard to deal with cancer and children and there is advice here too on Talking to children and teenagers that might be helpful.

    Do post on here whenever you feel it might help, someone is always listening.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Thank you so much for your lovely reply. 

    Seeing her yesterday and waving through the window was just heartbreaking.

    Its the not knowing and the whole uncertainty. 

    They are trying to get a care package in place and fingers crossed if she doesn't have any temperatures or relapses they are saying sje may be able to come home on Thursday. But there is so much to put in place first. The palliative consultant is amazing.

    Thank you for the advice and group information about the children I will take a look.

    I find this site brilliant and people are so kind as we all go on this heartbreaking journey. 

    Thank you Heart