Feeling haunted by C... and I still can't say the word!

FormerMember
FormerMember
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In 2017 we lost my sister to hodgkin's lymphoma, a year later our 14 year old son was diagnosed with a testicular tumour, he had surgery and is doing well physically whilst being monitored carefully.. the emotional effect on him and us all has been huge! This year, there was a few weeks where i thought i was going mad.  I was waiting for results of our boys 3 monthly scan, waiting for the results of my yearly mammogram (under the family history clinic) and then suddenly, waiting for results of my 80 year old dads colonoscopy.. 2 of the 3 were good.. our boys results were good, my scan was clear, but my dads wasn't and right in the middle of COVID 19!  He has a tumour in the rectal area, he starts radiotherapy in 10 days time, then he will need surgery and a permanent stoma bag.. I feel totally overwhelmed and the worst part is, I can barely see him because of the lockdown and the fact that he is terrified of catching CV... i want to reassure him and help but i need reassurance too.

  • Hi , I noticed your post and popped over from another group. One of our champions has personal experience here. If you pop over to this group  I'll just page and you'll find him a mine of information and support.

    Love and hugs,

    LoobyLou
    If you find dust in my house, write your name in it. When the signatures overlap I'll get the polish. 

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  • FormerMember
    FormerMember

    Thanks to my friend  for highlighting your post to me, I'm sorry I missed it last night.

    I'm so pleased to hear that both you own yearly mammogram and your sons three monthly scan have come back good and clear but the good news has been overshadowed by the results of your dads colonoscopy result showing a tumour needing radiotherapy followed by surgery and the formation of a stoma.

    Like most people the thought of having to wear a poop bag overwhelms everything else but I'm here to tell you with the hundred of thousands of people in this country living with a stoma it is a very management way of life and should only help to enhance the quality of life your dad would like to resume when  surgery has been completed.

    Over in the Ileostomy, colostomy, urostomy and any other stoma support group you and your dad will be made very welcome and you'll find a safe place to discuss everything to do with wearing a bag, I personally will be able to suggest Pouching options as well as products that can be used to overcome any issues that might arise and in general be your solution finder.

    I am always on the site, 7 days a week from early morning until late in the evening and usually check in at least during the night to help with anything that needs attention or give assurance and advice.

    I am here to answer questions on anything whatsoever, you can be assured that your question will never be deemed to be silly or daft, I look at it this way if you have something that's niggling away at you just ask me and let's get it answered and we can move on.

    I would like to invite you to join me over in the Ileostomy, colostomy, urostomy and any other stoma support group and hope to see over there soon.

    Life will change for your dad but we can help to make Living with a Stoma a lot easier.

    Ian

    CC