Brother has brain tumour & I’m heartbroken

FormerMember
FormerMember
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My 40 yr old previously healthy brother was rushed to hospital a few weeks ago & has been diagnosed with high grade tumour. He is now a shadow of his former self & I am struggling to come to terms with it.

He can barely talk, is generally disoriented & needs constant care. His partner is looking after him amazingly well in the circumstances, but I worry about her too as she cannot sleep for more than 1.5 hrs before he gets up in the night.

How are we supposed to cope with it all??

  • Hi and welcome to the online community

    It's perfectly natural to find that you're struggling with your emotions and knowing how to cope when you've discovered that someone you love has been diagnosed with cancer.

    I haven't been in your position, as I was the one with cancer, but I noticed that your post hadn't had any replies. By replying to you it will nudge it back to the top of the page where it may be seen by someone who has the experience you need.

    I'm also going to tag my fellow community champion into my reply as he looks after this group and will probably be able to help more than I can.

    Sending a supportive ((hug))

    Community Champion Badge

     "Never regret a day in your life, good days give you happiness, bad days give you experience"

  • Hi , sorry to read your story, you are right to be worried about a carer potentially not getting enough sleep as that is likely to make them very ill quite quickly. They should speak to someone about getting some extra care, their GP should be able to point in the right direction to get both a needs assesment and a carers assesment to help them cope.

    <<hugs>>

    Steve

    Community Champion Badge

  • FormerMember
    FormerMember in reply to src60

    Thank you for your reply Steve, I just need somewhere to vent. 

    My brothers partner has recently been getting help from the Macmillan team to make day to day easier.

    After more scans we have just been told instead of months, he now has only weeks left and has been referred to a local hospice.

    I am devastated & can’t help feeling that life is so unfair. 

    My partner says he is trying to stay strong for our daughter but to me it just feels like he doesn’t care.