Hi guys and gals, I'm new to this and not really sure what I should write but here goes.
September last year my mum was referred to the doctors as she was having bad headaches and having spells of fainting. They literally were "investigating falls". Until she had a particularly bad fall trying to get from work to her car and collapsed in the middle of the road. she was rushed to the hospital and after hours of tests the doctors finally told us that she had "grey areas on her brain and lungs". From then on its been a bit of a rollercoaster ride. She had an operation on her brain to remove the tumors in December and came home Christmas Eve (fantastic!) then had an operation on her lungs to remove the affected areas, where she was out within 2 days. However not two weeks after the lung operation in March she was having severe headaches again and I took her to A&E where they did more tests (eventually! it took them nearly 2 weeks to get an MRI sorted as she couldn't give them information as she was confused with the headaches). Then we were told that the doctors had found another "small grey area" in her brain and that they are now treating it as terminal. They're hoping to apply for her to have whole brain radiotherapy followed by chemo, but we are yet to hear back. Its weird as she looks fine, she's a bit weaker now (as she has been signed off from work since November) but in great spirits and very mobile. No headaches at the moment as she is on steroids and a carrier bag of meds.
My aunt and I are staying strong for her, but the emotional toll is a hard one.
I just wanted to be able to talk to other people who are going through the same thing as my friends are trying their best but it's hard for them to understand.
Hi,
I’m so sorry to hear about your mum. I’m new to these chats too but find them so supportive. My mother had bowel cancer which is now secondary in her Liver she had major surgery to remove the tumours from her stomach, before that we were told if she didn’t have surgery she would have 2-3 weeks to live. They did also say after surgery a few months which now has changed slightly because they are offering chemo. I know how you feel imagining life without my mother is the worst. It’s the strangest feeling when they are looking ok in themselves but you know that they have this hurrendous disease , it’s like a black cloud hovering over us all. It feels like you can’t live doesn’t it . All the waiting and thinking I honestly think at some points I’m going to drive myself mad . There’s nothing I can say that will make you feel better apart from I know exactly how you feel. I have a wonderful Dad , Husband , in-laws supporting me but I just feel so alone. Just can’t explain the numb feeling. I’m here if you ever need a chat, look after yourself and your wonderful mum. Time is so precious , make those memories that we can cherish forever.
Big hugs
Michelle
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