Having a bad day

Thanks. Also check Airedale - its a one stop shop  nhs service not in all areas x

www.health.org.uk/gold-line

They have spoken to mum about injections and stuff but she doesn't want that yet.  She still has days where the pain is bearable and she sees the injections as something "for later on" as she puts it, and she's not there yet. But to be honest I do wonder how much longer she has.  I just don't think it's in her to give up, she fights without even realising that's what she's doing.

Maisemae you're not selfish.  We all want our mum's love all the time, I know I do. 

God I hate this!

I'm not at mum's again until Wedensday.  My sister and brother are with mum.  I want to be with her but I know I need the 'me' time.  I know that you all understand.

Going to see the consultant on Monday.  I have a lot of questions that have never been answered.  i'm at the point where I need to know everything, including time scales.  i've never asked before but i need to know.

So tired.  I hope everyone gets some rest tonight. X

He's at peace. He passed around 02.30. About 10 minures before I got there. Someone was with him so he didn't die alone.

Sue xx

Shopgood I hope you can rest a little now. He reconciled with his family and is as you say at peace.  I know I can't know how you feel but I send you love.

Jxxx

Elenium your Mum sounds like mine. Hated wheelchair refusing pain killers. 

Mum is variable with pain too it's always there but she says she can breathe through it although of course she nearly fainted. 

She doesn't want to know timescales so we're in the dark.

Hug.

Jx

The fight is over. Stillness. Breath well. Im still here. I have no more words beyond that other than to say i hope you can pass through the grief to a liveable happy plateau where things are ok xxx

Oh Sue, thinking of you and sending you love and hugs. X

I've had to have all the difficult conversations with consultants as mum doesn't want to.  It's on all her medical records that they have to talk to me and not her.  I'm the one that has then told her what is going on.  She doesn't want to know all the details.  Before none of us wanted to know time scales but I'm at the point where I have to deal in facts, I need that to keep going.  If that makes sense. 

I'm hoping she's having a better day today. Just waiting for her to reply to my text. My sister is there today.  Two of my nieces are hoping to go and see her, but have to see if she's up to it. I've just text to tell them that mum's very frail now and has lost weight so they need to be prepared.  

Wish I could go bury my head in the sand today... 

v similar, ive asked all the ?s nobody wanted to ask. I had to ask. It helps to a degree although without a date it continues to be hard to adjust accordingly. Let go for a day and let yr sister carry mum and ask for an update when she leaves. X

(Easy to say i know)