Dad used to be independent but since his diagnosis is a wheelchair user, can no longer drive or do anything for himself. He is not seeing any improvement in his condition and does not want to get out of bed. He has lost interest in reading, watching television and is lonely. His condition means he feels the cold a lot. It is upsetting to see him like this as his daughter. Anything I can do to help? He seems to be more depressed after being taken out.
Hi AstronomyGeek and I see it's your first post so welcome to the Online Community but so sorry to hear about your dad's Myeloma diagnosis and the challenges you are dealing with.
I understand in part the journey your dad is on as I have lived and been treated for my type of incurable blood cancer for over 23 years and found myself in the same basic position back in Oct 2015 following a rather demanding Stem Cell Transplant. Leaving the unit in a wheelchair and not being able to walk or do anything for myself.
My clinical team were great and along with my long suffering wife got me through the down months and back on my feet walking..... but it was very hard work, a rather demanding process and I have to say some very tough love from my family.
I don't know Myeloma that well but some people do have mobility challenges and this may well be the case with your dad....... at the same time and based on my experience the less I did (or did not want to do)..... the longer my recovery was going to take.
The is a hard time for you so talking to other will help.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend you consider joining our supportive Myeloma support group. This is a safe place to talk to others who may have a similar diagnosis, treatment experience, to ask questions and get support from family members who are navigating the same journey.
When it comes to the practical and emotional challenges of supporting family and friends you may also benefit from joining our Carers only and Supporting someone with incurable cancer support groups where you will connect with others navigating the same support challenges.
Do get back to me if you need further help.
