Hi everyone , happy weekend , it's Saturday yet again , I was in hospital getting treatment for my aggressive diffused B cell lymphoma , the type of cancer Burkitt's lymphoma , I had 4 cycles , heavy going I can say that , I was on M/Codox R/Ivac ? If I have that right , my memory for getting this right 50/50... I was hoping to have a chat hopefully with other people who have had chemo , not necessarily the same as me but hoping to talk about side/after & late effects , I've had neuropathy from the 1st week of chemo & still have it , but it's got worse its now sore all my fingers & it's now in my palms , I've got according to my consultant nerve damage on my right leg from hip to my knee , it got worse just before Christmas so I had an appointment with her & she sent me for a PET Scan , everything came back clear , woohoo , I have an ongoing sore back due to the chemo making the fracture in my back worse & likely to be on painkillers for life now , but would like to hear other people's stories of their journey & how it affected them , take care everyone , keep safe and well
Hi Gypsy rover. I've just had my 4th cycle of Paclitaxel and Carboplatin for mets after womb cancer. I'm also suffering with peripheral neuropathy and have been prescribed Carboplatin. I've been on them a couple of weeks started 1 daily, then 2 second week now 3 tablets daily. It's helping a bit. I'm also using stress balls to aid circulation.
Nausea is also something I suffer with from day 4 - 9. I've been given Metoclopramide which help. I also drink ginger tea, ginger and lemon grass cordial, flat lemonade and tonic.
Still my last scan a couple of weeks ago have shown masses and lesions regressed so it's worth it. 2 more cycles to go and a little break before they decide the next plan of treatment.
Best wishes B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
