Hi everyone , happy weekend , it's Saturday yet again , I was in hospital getting treatment for my aggressive diffused B cell lymphoma , the type of cancer Burkitt's lymphoma , I had 4 cycles , heavy going I can say that , I was on M/Codox R/Ivac ? If I have that right , my memory for getting this right 50/50... I was hoping to have a chat hopefully with other people who have had chemo , not necessarily the same as me but hoping to talk about side/after & late effects , I've had neuropathy from the 1st week of chemo & still have it , but it's got worse its now sore all my fingers & it's now in my palms , I've got according to my consultant nerve damage on my right leg from hip to my knee , it got worse just before Christmas so I had an appointment with her & she sent me for a PET Scan , everything came back clear , woohoo , I have an ongoing sore back due to the chemo making the fracture in my back worse & likely to be on painkillers for life now , but would like to hear other people's stories of their journey & how it affected them , take care everyone , keep safe and well
Hi . I've just had my 4th cycle of Paclitaxel and Carboplatin for mets after womb cancer. I'm also suffering with peripheral neuropathy and have been prescribed Carboplatin. I've been on them a couple of weeks started 1 daily, then 2 second week now 3 tablets daily. It's helping a bit. I'm also using stress balls to aid circulation.
Nausea is also something I suffer with from day 4 - 9. I've been given Metoclopramide which help. I also drink ginger tea, ginger and lemon grass cordial, flat lemonade and tonic.
Still my last scan a couple of weeks ago have shown masses and lesions regressed so it's worth it. 2 more cycles to go and a little break before they decide the next plan of treatment.
Best wishes B xx
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
"Never lose hope. Storms make people stronger and never last forever” - Roy T Bennett
Afternoon MrsBJH , Thank you for getting back to me , I've never felt sick , lightheaded or any other symptoms , sorry to hear that you seem to be having a hard time of it , I've been drinking milk & diluted juices , not a tea or coffee drinker , I was drinking Pepsi max but found out it was making my symptoms worse , so no more of that , my gp is leaving me a note for neuropathy gel cream for my hands , not much he can do for the rest of me , I'm going up to the Maggie's center today & see what else they can do for me , already had a relaxing relaxation class and a body beautiful class , fab enjoyed both of them , you take care , hopefully talk again , keep safe and well Xx
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
© Macmillan Cancer Support 2026 © Macmillan Cancer Support, registered charity in England and Wales (261017), Scotland (SC039907) and the Isle of Man (604). Also operating in Northern Ireland. A company limited by guarantee, registered in England and Wales company number 2400969. Isle of Man company number 4694F. Registered office: 3rd Floor, Bronze Building, The Forge, 105 Sumner Street, London, SE1 9HZ. VAT no: 668265007