I’m 36 & have locally advance rectal cancer. Treatment plan is radiotherapy (done ) 4 cycles of capox and then surgery.
I started my chemo last Monday. During first 2 days, I noticed slight tightness in my jaw and pins and needles in my hands and feet. Eyes burning if they watered. Would get unsteady/dizzy when walking but generally was ok, I could cope with help.
After a few days, the jaw tightness and dizziness got worse. Would have episodes of heart palpitations, hot flush, feeling dizzy and chest tightness. Have now stopped all medication until I can have a review today (Monday).
Is this normal? I knew I would feel lousy, sickness etc and I knew I would need lots of help but honestly it feels like I’m going to pass out several times a day in waves. I have 3 young children and am on my own. Because of the side effects it doesn’t feel safe to be with them on my own & I wouldn’t dare drive so I just don’t see how I can do this for 3 months.
I really want to continue with the treatment as I want the best prognosis but I feel really defeated right now ️
Hi Dani346 I see it’s your first post so welcome to the Community.
I have been in my cancer journey for over 26 years and have had a lot of treatment but it is important to compare Apples with Apples when it comes to treatment.
The Community is actually divided into dedicated Support Groups (Discussion Rooms) so can I recommend that you look to join and put up your post in our dedicated…….
Bowel (colon and rectum) cancer
…….. support group.
This group is a safe place to talk to others with a similar diagnosis, treatment experience, to ask questions and get support.
Hi Dani346, I’m late to your post and hope by now you’re feeling a bit better? Did you restart your chemo? I’m 43 and had had a rare type of ovarian cancer (infiltrative mucinous) removed, hopefully completely, in July. There’s little data for my cancer but I’m on CAPOX adjuvant chemo as it doesn’t respond well to traditional ovarian chemotherapies. I’ve just started cycle 2 and am finding it rough. I kept a symptom diary with cycle 1 and things seemed to improve around day 6/7 and turn a corner around day 11 last time. How’re you getting on? Did you restart your chemo?
Whatever cancer throws your way, we’re right there with you.
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